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SEER collects cancer incidence data from population-based cancer registries covering approximately 47.9 percent of the U.S. population. The SEER registries collect data on patient demographics, primary tumor site, tumor morphology, stage at diagnosis, and first course of treatment, and they follow up with patients for vital status.There are two data products available: SEER Research and SEER Research Plus. This was motivated because of concerns about the increasing risk of re-identifiability of individuals. The Research Plus databases require more rigorous process for access that includes user authentication through Institutional Account or multiple-step request process for Non-Institutional users.
Proper citation: Surveillance Epidemiology and End Results (RRID:SCR_006902) Copy
Global registry of research data repositories from all academic disciplines that allows the easy identification of appropriate research data repositories, both for data producers and users. Information icons display principal attributes of a repository that can be used for multi-faceted searches. Repository operators can suggest their infrastructures to be listed via a simple application form. A repository is indexed when the minimum requirements are met, i.e. mode of access to the data and repository, as well as the terms of use.
Proper citation: re3data.org (RRID:SCR_006782) Copy
https://seer.cancer.gov/seerstat/
Statistical software for analysis of SEER and other cancer-related databases.Used to view individual cancer records and to produce statistics for studying impact of cancer on population.
Proper citation: SEER*Stat (RRID:SCR_025808) Copy
http://seer.cancer.gov/resources/
Portal provides SEER research data and software SEER*Stat and SEER*Prep. SEER incidence and population data associated by age, sex, race, year of diagnosis, and geographic areas can be used to examine stage at diagnosis by race/ethnicity, calculate survival by stage at diagnosis, age at diagnosis, and tumor grade or size, determine trends and incidence rates for various cancer sites over time. SEER releases new research data every Spring based on the previous November’s submission of data.
Proper citation: SEER Datasets and Software (RRID:SCR_003293) Copy
https://healthcaredelivery.cancer.gov/seermedicare/considerations/calculation.html
Portal provides SAS Macros to calculate comorbidity weights. Used to assist SEER-Medicare investigators with their analyses. NCI recommends use of the 2021 macro. The 2014 and 2000 versions are provided for those needing to reproduce prior results. These macros offer the option of including Medicare hospital (MedPAR) claims only, or also considering physician (NCH) and outpatient claims. The Rule-Out option is recommended in the latter situation. Note that diagnoses using ICD-10 codes, starting in October 2015, are not included in the 2000 and 2014 macros. NCI does not accept responsibility for the completeness or accuracy of the codes and weights used in the macros. Investigators may modify the macros if they wish to include different diagnosis codes or condition weights.
Proper citation: NCI Division of Cancer Control and Population Sciences SEER-Medicare Comorbidity SAS Macros (RRID:SCR_025810) Copy
https://healthcaredelivery.cancer.gov/seermedicare/
Portal to reflect the linkage of two large population based sources of data that provide detailed information about Medicare beneficiaries with cancer.
Proper citation: NCI Division of Cancer Control and Population Sciences SEER-Medicare Linked Data Resource (RRID:SCR_025811) Copy
https://seer.cancer.gov/analysis/stage.html
Portal provides links to documentation for several stage variables that are available in the SEER data for analysis.
Proper citation: NCI SEER Cancer Stage Variable Documentation (RRID:SCR_025809) Copy
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