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| Resource Name | Proper Citation | Abbreviations | Resource Type |
Description |
Keywords | Resource Relationships | |||||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
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ERA-EDTA Resource Report Resource Website 10+ mentions |
ERA-EDTA (RRID:SCR_003982) | ERA-EDTA | portal, data or information resource, community building portal | An association of European kidney specialists whose objective is advancement of medical science and of clinical work in nephrology, dialysis, renal transplantation, hypertension and related subjects. They aim at providing up-to-date knowledge, exclusively based on scientific data, independent from governments'' policies and from any influence of the industry. It is registered in England and Wales, but its area of activity mainly covers Europe and the Mediterranean area. | kidney, dialysis, transplant, nephrology, medical, clinical, renal transplantation, hypertension | is related to: Kidney Health Initiative | Kidney disease | nlx_158389 | SCR_003982 | European Renal Association - European Dialysis and Transplant Association, European Renal Association - European Dialysis & Transplant Association | 2026-08-01 12:02:29 | 22 | |||||||
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Kidney Health Initiative Resource Report Resource Website |
Kidney Health Initiative (RRID:SCR_003869) | KHI | portal, consortium, data or information resource, organization portal | Consortium that brings together the kidney community (patient advocacy groups, industry, government agencies, and professional organizations) to overcome existing challenges, including regulatory and nonregulatory barriers, and optimize the development and safety of products that impact kidney health including drugs, devices, biologics, and food products. The goals of the consortium are to: * Facilitate dialogue and research that informs regulatory processes with regard to the kidney health of patients being treated for kidney-related as well as other diseases. * Assess current medical therapies and diagnostics to identify areas in need of greater innovation and/or better defined regulatory pathways. * Develop innovative and efficient trial designs appropriate to answer the most important questions related to kidney health. * Establish expert consensus around common terminology and key definitions related to kidney health. * Develop approaches to the systematic collection of retrospective or prospective data, such as registries and/or global databases, and establishment of data standards. * Coordinate think tanks, public forums, educational exchanges, and other events to promote discussion and updates on topics in kidney health pertaining to drug, device, biologics, and food product development and evaluation. * Create transparent infrastructure and processes that facilitate collaboration and communication among the greater nephrology community and the FDA, including: * Seek input from all stakeholders (including nephrologists and other health professionals, patient groups, industry, the National Institutes of Health, the Centers for Medicare and Medicaid Services, the Health Resources and Services Administration, and other federal agencies). * Leverage previously conducted and ongoing clinical studies, research infrastructure, and databases. * Create an open and efficient mechanism for encouraging and objectively evaluating potential projects submitted to KHI. * Involve consortium members in the selection and execution of projects. * Establish systems to optimize post-market surveillance of products that affect kidney health, either intentionally or via adverse drug reactions. * Author journal articles and white papers regarding key issues, describing opportunities and challenges and proposing solutions, as well as promoting execution of these solutions. | device development, drug development, tool development, basic research, drug, device, biologics, food product, kidney, data standard, nephrology, safety, innovation, public health |
is listed by: Consortia-pedia is related to: AbbVie is related to: American Association of Kidney Patients is related to: American College of Clinical Pharmacy is related to: American Nephrology Nurses Association is related to: American Society for Apheresis is related to: American Society of Diagnostic and Interventional Nephrology is related to: ASN - American Society of Nephrology is related to: American Society of Pediatric Nephrology is related to: American Society of Transplantation is related to: Anthera Pharmaceuticals is related to: Arbor Research Collaborative for Health is related to: Association for the Advancement of Medical Instrumentation is related to: Baxter is related to: C. R. Bard is related to: ChemoCentryx is related to: ClinMet is related to: University of Oxford; Oxford; United Kingdom is related to: DaVita is related to: Dialysis Patient Citizens is related to: Duke University School of Medicine; North Carolina; USA is related to: ERA-EDTA is related to: FAST BioMedical is related to: Shire is related to: Home Dialyzors United is related to: Hospira is related to: All India Institute of Medical Sciences; New Delhi; India is related to: Juvenile Diabetes Research Foundation is related to: Karolinska Institute; Stockholm; Sweden is related to: University of Washington; Seattle; USA is related to: Mallinckrodt Pharmaceuticals is related to: MediBeacon is related to: Medtronic is related to: National Kidney Foundation is related to: National Renal Administrators Association is related to: NephCure Kidney International is related to: Nephrology Nursing Certification Commission is related to: Nephropath is related to: NxStage Medical is related to: OPKO is related to: Otsuka America Pharmaceutical Inc. is related to: Pfizer Animal Genetics is related to: PKD Foundation is related to: Proteon Therapeutics is related to: Puracath Medical is related to: Quintiles is related to: Reata Pharmaceuticals is related to: Relypsa is related to: Renal Physicians Association is related to: Renal Support Network is related to: Rockwell Medical is related to: St. Marianna University School of Medicine; Kawasaki; Japan is related to: Binding Site is related to: George Institute for Global Health is related to: Thrasos Therapeutics is related to: Vascular Access Society is related to: Vascular Access Society of the Americas is related to: Vascular Therapies is related to: Vasculitis Foundation is related to: W. L. Gore and Associates is related to: U.S. Food and Drug Administration has parent organization: ASN - American Society of Nephrology has parent organization: U.S. Food and Drug Administration has parent organization: Agency for Healthcare Research and Quality has parent organization: Centers for Medicare and Medicaid Services has parent organization: National Institutes of Health |
U.S. Food and Drug Administration ; Membership dues |
nlx_158194 | SCR_003869 | Kidney Health Initiative (KHI) | 2026-08-01 12:02:34 | 0 |
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