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| Resource Name | Proper Citation | Abbreviations | Resource Type |
Description |
Keywords | Resource Relationships | |||||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
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PhenoTips Resource Report Resource Website 10+ mentions |
PhenoTips (RRID:SCR_006340) | PhenoTips | software application, software resource | A software tool providing a Web interface and a database back-end for collecting clinical symptoms and physical findings observed in patients with genetic disorders. The main goals of this software are * To allow for collecting patient data in standard formats, enabling effortless data exchange and automated search in annotated gene and disease databases, and * To provide advanced functionalities and a friendly user interface that help reduce the clinician''''s workload, permitting seamless use of this application within the clinician''''s routine. PhenoTips uses the Human Phenotype Ontology (HPO) to express clinical phenotypes, and provides a friendly interface with error-tolerant, predictive search of phenotypic descriptions. PhenoTips closely mirrors clinician workflows: observations can be recorded directly during the patient encounter, and the interface is compatible with any device that runs a modern Web browser. The clinician can record demographic information, family history, medical history, various standard measurements, phenotypic abnormalities detected in the patient, pertinent indications that were not observed and that can be helpful for differential diagnosis, relevant images depicting manifestations of the patient''''s disorders, and additional notes for each of these categories. The software automatically plots growth curves, selects phenotypes reflecting abnormal measurements, instantly finds OMIM disorders matching the phenotypic description and suggests other symptoms to investigate in order to reach a more accurate diagnosis. | clinical symptom, physical finding, clinical, phenotype, demographic information, family history, medical history, standard measurement, indication, image, note, growth curve |
is related to: Human Phenotype Ontology is related to: OMIM has parent organization: University of Toronto; Ontario; Canada |
Genetic disorder | Free | nlx_152049 | SCR_006340 | PhenoTips: phenotyping made easy | 2026-09-03 05:05:09 | 24 | ||||||
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National Alzheimer's Coordinating Center Resource Report Resource Website 50+ mentions |
National Alzheimer's Coordinating Center (RRID:SCR_007327) | NACC | biomaterial supply resource, material resource | A clinical research, neuropathological research and collaborative research database that uses data collected from 29 NIA-funded Alzheimer's Disease Centers (ADCs). The database consists of several datasets, and searches may be done on the entire database or on individual datasets. Any researcher, whether affiliated with an ADC or not, may request a data file for analysis or aggregate data tables. Requested aggregate data tables are produced and returned as soon as the queue allows (usually within 1-3 days depending on the complexity). | alzheimer's disease, brain, clinical, database, disease, human, neuropathological, neuropathology, specimen, tissue, FASEB list |
is listed by: One Mind Biospecimen Bank Listing is related to: Alzheimers Disease Genetics Consortium is related to: Alzheimers Disease Genetics Consortium is related to: National Cell Repository for Alzheimer's Disease has parent organization: University of Washington; Seattle; USA |
Alzheimer's disease, Dementing disorder, Dementia | NIH Blueprint for Neuroscience Research ; NIA U01 AG016976 |
Data are freely available to all researchers | nif-0000-00203 | SCR_007327 | National Alzheimer's Coordinating Center | 2026-09-03 05:04:23 | 54 | |||||
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ClinGen Resource Report Resource Website 1000+ mentions |
ClinGen (RRID:SCR_014968) | CGR | data or information resource, database | Genomics knowledgebase for clinical relevance of genes and variants for use in research. ClinGen's primary function is to store and share information for the benefit of the scientific community. Laboratory scientists, clinicians, and patients can share and access data. | database, knowledgebase, genomics, healthcare, clinical, FASEB list | is related to: CivicDb | Eunice Kennedy Schriver NICHD ; NHGRI U41 HG006834-01A1; NHGRI U01 HG007437-01; NHGRI U01 HG007436-01; NCI HHSN261200800001E; NCI contract HHSN261200800001E |
PMID:26014595 | Free, Available to the scientific community | SCR_014968 | Clinical Genome Resource (ClinGen), Clinical Genome Resource | 2026-09-03 05:03:49 | 1153 | ||||||
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Genetics of Kidneys in Diabetes Resource Report Resource Website |
Genetics of Kidneys in Diabetes (RRID:SCR_000133) | GoKinD, Go KinD | biomaterial supply resource, material resource | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on July 31,2025. Collect, store, and distribute genetic samples from cases and controls of type 1 diabetes and diabetic nephropathy for investigator-driven research into the genetic basis of diabetic nephropathy. As the risk of kidney complications in type 1 diabetes appears to have a considerable genetic component, this study assembled a large data resource for researchers attempting to identify causative genetic variants. The types of data collected allowed traditional case-control testing, a rapid and often powerful approach, and family-based analysis, a robust approach that is not influenced by population substructure. | clinical, genetics, genetic variant, gene, data set |
is listed by: One Mind Biospecimen Bank Listing is listed by: NIDDK Information Network (dkNET) has parent organization: George Washington University; Washington D.C.; USA |
Type 1 diabetes, Diabetes, Diabetic nephropathy, Kidney disease | JDRF ; NIH |
PMID:16775037 | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_152764 | http://www.gokind.org/access | SCR_000133 | Genetics of Kidneys in Diabetes (GoKinD) Study, Genetics of Kidneys in Diabetes Study | 2026-09-03 05:04:23 | 0 | |||
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Italian Rett Syndrome database Resource Report Resource Website 1+ mentions |
Italian Rett Syndrome database (RRID:SCR_002000) | Rett syndrome bank | biomaterial supply resource, material resource | Data and biospecimen from Rett Syndrome patients shared with the scientific community with the ability to visualize the list of available samples and select those with specific clinical and molecular features. It also contains information on biospecimen samples from x-linked retardation, microdeletion, duplication syndromes, autosomal MR, and retinoblastoma. The bank is active since 1998 and it is located in the Medical Genetics Unit, at the University Hospital of Siena. The bank is divided in three distinct sections: # Rett Syndrome. This section contains samples from patients affected by Rett syndrome, a neurodegenerative disease affecting almost exclusively girls with an estimated frequency of 1:10000-15000 live born. By accessing the section users can see a list of all patients available with their phenotype, the specific MECP2 or CDKL5 mutation if known and the kind of biological samples available for each patient. The availability of this large panel of patients is potentially important for the clarification of the molecular bases of Rett syndrome. In fact, a 20-30 of Rett cases do not have MECP2 or CDKL5 mutations. These patients might bear intronic/promoter MECP2 or CDKL5 mutations or they might have alterations in one or more genes different from MECP2 or CDKL5, as suggested by the identification of various chromosomal rearrangements. To confirm a causative role of these rearrangements, and to identify the relevant gene/s, it is important to collect a great number of patients in which to search for overlapping rearrangements or point mutations in candidate genes. # X-Linked Mental Retardation. This section contains samples collected by the centers belonging to the Italian network on X-linked mental retardation, which includes the laboratory of bank curators (for specific information on the network goals and organization, go to the section page). Mental retardation (MR) is the most frequent cause of serious handicap in humans with an estimated prevalence of 0,3-0,5 for moderate to severe MR (IQ<50) which increases to 1-1,5 when mild MR (IQ 50-70) is included. It is calculated that about 20-25 of mentally retarded males have a mutation in a gene on the X chromosome (X-linked mental retardation). X-linked mental retardation is a genetically heterogeneous condition. This is particularly true for the non-syndromic form (MRX), where MR is the only consistent clinical finding and no distinctive features between patients exist. In this situation the only possibility to group patients from different families is represented by linkage analysis, which needs the availability of large families. However, families linked to the same region demonstrate different causative genes. In these conditions, the number of patients available for analysis is a discriminating factor since a large number of patients need to be tested in order to fully confirm or exclude the involvement of a gene in MRX. # Other. This section of the bank contains biological materials and clinical data of patients with other genetic disorders (different from Rett and X-linked mental retardation). Part of this section is dedicated to Alport syndrome. Services: * Isolation of leukocytes from human peripheral blood samples * Establishment of EBV transformed lymphoblastoid cell lines from human peripheral blood leukocytes. * DNA extraction. * Plasma isolation. * Storage: ** Cryo-preservation of transformed cell lines and primary leukocytes at 135��C ** Storage of DNA at 20 degrees C ** Storage of plasma at 20 degrees C * Distribution of the stored biological samples. | duplication syndrome, autosomal mr, microdeletion, retinoblastoma, mecp2, cdkl5, foxg1, clinical, mutation, phenotype, lymphoblastoid cell line, leukocyte, dna, plasma, blood, biomaterial manufacture |
is listed by: One Mind Biospecimen Bank Listing has parent organization: University of Siena; Tuscany; Italy |
Rett Syndrome, Duplication syndrome, Autosomal MR, Microdeletion, Retinoblastoma, X-linked retardation | Telethon Foundation | THIS RESOURCE IS NO LONGER IN SERVICE | nif-0000-12492 | http://www.biobank.unisi.it/ScegliArchivio.asp | SCR_002000 | 2026-09-03 05:03:31 | 2 | |||||
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GERON Resource Report Resource Website 1+ mentions |
GERON (RRID:SCR_008531) | GERON | software resource, software toolkit | A suite of web-based open source software programs for clinical and genetic study. The aims of this software development in the Laboratory of Neurogenetics, NIA, NIH are * Build retrievable clinical data repository * Set up genetic data bank * Eliminate redundant data entries * Alleviate experimental error due to sample mix-up and genotyping error. * Facilitate clinical and genetic data integration. * Automate data analysis pipelines * Facilitate data mining for genetic as well as environmental factors associated with a disease * Provide an uniformed data acquisition framework, regardless the type of a given disease * Accommodate the heterogeneity of different studies * Manage data flow, storage and access * Ensure patient privacy and data confidentiality/security. The GERON suite consists of several self contained and yet extensible modules. Currently implemented modules are GERON Clinical, Genotyping, and Tracking. More modules are planned to be added into the suite, in order to keep up with the dynamics of the research field. Each module can be used separately or together with others into a seamless pipeline. With each module special attention has been given in order to remain free and open to the academic/government user., THIS RESOURCE IS NO LONGER IN SERVICE. Documented on September 16,2025. | clinical, genotyping, tracking, genetic, module, pipeline | has parent organization: Intramural Research Program | Aging | NIA | THIS RESOURCE IS NO LONGER IN SERVICE | nif-0000-30610 | SCR_008531 | 2026-09-03 05:04:14 | 5 | ||||||
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Chronic Renal Insufficiency Cohort Study Resource Report Resource Website 1+ mentions |
Chronic Renal Insufficiency Cohort Study (RRID:SCR_009016) | CRIC Study, CRIC | biomaterial supply resource, material resource | A prospective observational national cohort study poised to make fundamental insights into the epidemiology, management, and outcomes of chronic kidney disease (CKD) in adults with intended long-term follow up. The major goals of the CRIC Study are to answer two important questions: * Why does kidney disease get worse in some people, but not in others? * Why do persons with kidney disease commonly experience heart disease and stroke? The CRIC Scientific and Data Coordinating Center at Penn receives data and provides ongoing support for a number of Ancillary Studies approved by the CRIC Cohort utilizing both data collected about CRIC study participants as well as their biological samples. The CRIC Study has enrolled over 3900 men and women with CKD from 13 recruitment sites throughout the country. Following this group of individuals over the past 10 years has contributed to the knowledge of kidney disease, its treatment, and preventing its complications. The NIDDKwill be extending the study for an additional 5 years, through 2018. An extensive set of study data is collected from CRIC Study participants. With varying frequency, data are collected in the domains of medical history, physical measures, psychometrics and behaviors, biomarkers, genomics/metabolomics, as well as renal, cardiovascular and other outcomes. Measurements include creatinine clearance and iothalamate measured glomerular filtration rate. Cardiovascular measures include blood pressure, ECG, ABI, ECHO, and EBCT. Clinical CV outcomes include MI, ischemic heart disease-related death, acute coronary syndromes, congestive heart failure, cerebrovascular disease, peripheral vascular disease, and composite outcomes. The CRIC Study has delivered in excess of 150,000 bio-samples and a dataset characterizing all 3939 CRIC participants at the time of study entry to the NIDDKnational repository. The CRIC Study will also be delivering a dataset to NCBI''''s Database for Genotypes and Phenotypes. | clinical, epidemiology, management, outcome, adult human, medical history, physical measure, psychometrics, behavior, renal, biomarker, genomics, gwas, kidney, data sharing, bibliography, observational cohort study, male, female, cardiovascular, heart, kidney, risk factor, metabolomics |
is listed by: One Mind Biospecimen Bank Listing is listed by: NIDDK Information Network (dkNET) is listed by: NIDDK Research Resources is listed by: Diabetes Research Centers is related to: NCBI database of Genotypes and Phenotypes (dbGap) is related to: NIDDK Central Repository is related to: AASK Clinical Trial and Cohort Study has parent organization: University of Pennsylvania Perelman School of Medicine; Pennsylvania; USA |
Chronic kidney disease, Cardiovascular disease | NIDDK | Proposals to carry out ancillary studies are welcome | nlx_152758 | SCR_009016 | Chronic Renal Insufficiency Cohort (CRIC) Study | 2026-09-03 05:04:37 | 2 | |||||
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Clinical Trial Management Application Resource Report Resource Website |
Clinical Trial Management Application (RRID:SCR_013531) | CTMA | software application, software resource | THIS RESOURCE IS NO LONGER IN SERVICE, documented on October 11, 2012. The Clinical Trials Management Tools are Java-based suite (accessed via a secure intranet) for managing various aspects of a clinical trial, research protocols, outcomes initiatives, statistical research analysis, as well as CTEP/CDUS reporting. Developed in collaboration with the Clinical Research Services (CRS) Office at the UPCI, this research-based application provides an integrated tool for managing administrative (e.g. IRB submissions and approvals) and clinical (e.g. tumor measurements, registrations/ screenings) functions for the collection and analysis of data generated from a clinical trial. More information can be found here, http://www.upci.upmc.edu/spore/skin/coreD.cfm | clinical trial, clinical, research protocol, outcomes initiative, statistical research analysis, ctep reporting, cdus reporting, clinical study, bioinformatics, computer platform, windows |
is listed by: Biositemaps has parent organization: University of Pittsburgh; Pennsylvania; USA |
THIS RESOURCE IS NO LONGER IN SERVICE | nif-0000-33266 | SCR_013531 | Clinical Trial Management Application (CTMA) | 2026-09-03 05:05:01 | 0 | |||||||
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EPILEPSIE database Resource Report Resource Website 1+ mentions |
EPILEPSIE database (RRID:SCR_003179) | data or information resource, database | A comprehensive database for human surface and intracranial EEG data that is suitable for a broad range of applications e.g. of time series analyses of brain activity. Currently, the EU database contains annotated EEG datasets from more than 200 patients with epilepsy, 50 of them with intracranial recordings with up to 122 channels. Each dataset provides EEG data for a continuous recording time of at least 96 hours (4 days) at a sample rate of up to 2500 Hz. Clinical patient information and MR imaging data supplement the EEG data. The total duration of EEG recordings included execeeds 30000 hours. The database is composed of different modalities: Binary files with EEG recording / MR imaging data and Relational database for supplementary meta data. | seizure, electroencephalography, mri, eeg recording, metadata, intracranial, surface, time series analyses, brain activity, brain, clinical, image collection |
is listed by: NeuroImaging Tools and Resources Collaboratory (NITRC) has parent organization: University of Freiburg; Baden-Wurttemberg; Germany |
Epilepsy | Excellence Initiative of the German Federal and State Governments ; European Union 211713; BMBF 01GQ0420; German Science Foundation Ti 315/4-2 |
PMID:22738131 | Free, Freely available | nlx_156892 | http://www.nitrc.org/projects/epilepsiaedb http://epilepsy-database.eu/project/ http://www.epilepsiae.eu http://epilepsy-database.eu | SCR_003179 | EPILEPSIAE Project Database, European Epilepsy Database | 2026-09-03 05:01:29 | 3 | ||||
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DepressionTools.org Clinical Significance Calculator Resource Report Resource Website |
DepressionTools.org Clinical Significance Calculator (RRID:SCR_003873) | DepressionTools.org | analysis service resource, data analysis service, production service resource, service resource | Online instrument that estimates whether a biomarker predicting outcome of depression treatment is likely to be clinically significant. | biomarker, clinical significance, treatment, clinical, outcome, software as a service, binary, genetic, continuous, effect size |
uses: Hamilton Rating Scale for Depression has parent organization: NEWMEDS |
Depressive Disorder | PMID:22256872 | nlx_158198 | SCR_003873 | Clinical Significance Calculator | 2026-09-03 05:01:29 | 0 | ||||||
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AIDS and Cancer Specimen Resource Resource Report Resource Website 10+ mentions |
AIDS and Cancer Specimen Resource (RRID:SCR_004216) | ACSR | biomaterial supply resource, material resource, tissue bank | A biorepository for HIV-infected human biospecimens from a wide spectrum of HIV-related or associated diseases, including cancer, and from appropriate HIV-negative controls. The ACSR has formalin-fixed paraffin embedded biospecimens, fresh frozen biospecimens, malignant cell suspensions, fine needle aspirates, and cell lines from patients with HIV-related malignancies. It also contains serum, plasma, urine, bone marrow, cervical and anal specimens, saliva, semen, and multi-site autopsy speicmens from patients with HIV-related malignancies including those who have participated in clinical trials. The ACSR has an associated databank that contains prognostic, staging, outcome and treatment data on patients from whom tissues were obtained. The ACSR database contains more than 300,000 individual biospecimens with associated clinical information. Biospecimens are entered into the ACSR database by processing type, disease category, and number of cases defined by disease category. | aids, hiv, cancer, virology, immunology, pathology, epidemiology, tumor, assay development, clinical data, clinical, tumor tissue, biological fluid, bodily fluid, malignant cell suspension, fine needle aspirate, cell line, serum, plasma, urine, bone marrow, cervical specimen, anal specimen, saliva, semen |
is listed by: One Mind Biospecimen Bank Listing has parent organization: University of California at San Francisco; California; USA |
AIDS, Cancer, HIV-associated malignancy, HIV | NCI | nlx_23946 | http://acsr.ucsf.edu/Home/tabid/37/Default.aspx | SCR_004216 | ACSR - AIDS and Cancer Specimen Resource | 2026-09-03 05:01:20 | 15 | |||||
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Canadian Breast Cancer Foundation Tumor Bank Resource Report Resource Website 1+ mentions |
Canadian Breast Cancer Foundation Tumor Bank (RRID:SCR_004214) | CBCF TB | biomaterial supply resource, material resource, tissue bank | THIS RESOURCE IS NO LONGER IN SERVICE, documented May 18, 2022. A tumor bank that provides a large collection of cancer specimens, from breast and other cancers, annotated with clinical information. The CBCF TB enables researchers to address unanswered questions concerning the prognosis and treatment of breast cancer and other cancers. The CBCF TB website is also directed to participants interested in donating tumor tissue or blood. Biological specimens such as blood, urine, bone marrow, and ascites (fluid that sometimes collects in the abdomen) contain genetic information, just as tumor tissue does. These samples can be used in studies that may help researchers see how people with certain genetic make-ups respond to certain treatments. It can also explain why different people have different health problems. CBCF TB, formerly ARTB, was created by a merger of components of two existing Tumor-banking initiatives, the CLS Repository in Calgary and the Tumor bank of the PolyomX Program in Edmonton. | clinical information, clinical |
is listed by: One Mind Biospecimen Bank Listing is related to: Canadian Tumour Repository Network has parent organization: Canadian Breast Cancer Foundation |
Breast cancer, Tumor, Cancer | Canadian Breast Cancer Foundation ; Alberta Cancer Foundation |
THIS RESOURCE IS NO LONGER IN SERVICE | nlx_143637 | http://www.abtumorbank.com/ | SCR_004214 | Canadian Breast Cancer Foundation Alberta Research Tumor Bank, ARTB, CBCF Tumor Bank, Alberta Research Tumor Bank | 2026-09-03 05:01:40 | 3 | ||||
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Nephromine Resource Report Resource Website 10+ mentions |
Nephromine (RRID:SCR_003813) | data or information resource, database | THIS RESOURCE IS NO LONGER IN SERVICE; REPLACED BY NEPHROSEQ; A growing database of publicly available renal gene expression profiles, a sophisticated analysis engine, and a powerful web application designed for data mining and visualization of gene expression. It provides unique access to datasets from the Personalized Molecular Nephrology Research Laboratory incorporating clinical data which is often difficult to collect from public sources and mouse data. | kidney, gene expression, visualization, clinical, expression profile, gene, mouse model, microarray |
is listed by: NIDDK Information Network (dkNET) is related to: Nephroseq has parent organization: University of Michigan; Ann Arbor; USA has parent organization: Life Technologies |
Kidney disease, Healthy, Lupus nephritis, Chronic kidney disease, Diabetic nephropathy | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_158114 | SCR_003813 | 2026-09-03 05:01:18 | 20 | ||||||||
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Tumorbank Bern Resource Report Resource Website |
Tumorbank Bern (RRID:SCR_004611) | TBB | biomaterial supply resource, material resource, tissue bank | Tumorbank Bern - TBB collects high quality clinical samples since 2003 for translational research selected by expert pathologists under controlled conditions of normal and diseased tissue from different origin. The Tumor Bank is approved by the Ethical Commission of Bern, we only collect samples with written informed patient consent. Origin of Tissue: Thoracic Surgery, Gynecology, Urology, Visceral Surgery, Orthopedic Surgery, Head and Neck Surgery, Neurosurgery Tumorbank Bern TBB holds 12,000 samples from 3600 Patients. Please contact us to check if we have samples for your field of research. | tissue, tumor, cancer, normal, diseased, clinical, thoracic, gynecology, urology, visceral, orthopedic, head and neck, neurosurgery |
is listed by: One Mind Biospecimen Bank Listing has parent organization: University of Bern; Bern; Switzerland |
Tumor, Cancer, Normal, Diseased | Bernese Cancer League | Public: Please contact us to check if we have samples for your field of research. | nlx_60955 | SCR_004611 | Tumorbank Bern TBB, Tumorbank Bern - TBB, Tumor Bank Bern | 2026-09-03 05:01:32 | 0 | |||||
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National Surgical Adjuvant Breast and Bowel Project Tissue Bank Resource Report Resource Website |
National Surgical Adjuvant Breast and Bowel Project Tissue Bank (RRID:SCR_004506) | NSABP Tissue Bank | biomaterial supply resource, material resource, tissue bank | The NSABP (National Surgical Adjuvant Breast and Bowel Project) Tissue Bank is the central repository of tissue samples (stained and unstained slides, tissue blocks, and frozen tissue specimens) collected from clinical trials conducted by the NSABP. The main scientific aim of the NSABP Division of Pathology is to develop clinical context-specific prognostic markers and predictive markers that predict response to or benefit from specific therapeutic modality. To achieve this aim, the laboratory collects the tumor and adjacent normal tissues from cancer patients enrolled into the NSABP trials through its membership institutions, and maintain these valuable materials with clinical follow-up information and distribute them to qualified approved investigators. Currently, specimens from more than 90,000 cases of breast and colon cancer are stored and maintained at the bank. Paraffin embedded tumor specimens are available from NSABP trials. We currently do not bank frozen tissues. All blocks are from patients enrolled in prospective NSABP treatment protocols and complete clinical follow up information as well as demographic information is available. Depending on the project, unstained tissue sections of 4-micrometer thickness, tissue microarrays, or stained slides are provided to the investigators in a blinded study format. Any investigators with novel projects that conform to the research goals of NSABP may apply for the tissue. Please refer to the NSABP Tissue Bank Policy to determine if your project conforms to these goals. Priority is given to NSABP membership institutions who regularly submit tissue blocks. | clinical, clinical data, demographic data, tumor, specimen, breast tissue, bowel tissue, tumor tissue, adjacent normal tissue, tissue, stained slide, unstained slide, tissue block, paraffin embedded, tissue microarray, cancer, breast cancer, colon cancer, normal |
is listed by: One Mind Biospecimen Bank Listing has parent organization: University of Pittsburgh; Pennsylvania; USA |
Cancer, Breast cancer, Colon cancer | NCI | Public: Any investigators with novel projects that conform to the research goals of NSABP may apply for the tissue. Priority is given to NSABP membership institutions who regularly submit tissue blocks. | nlx_48875 | http://www.nsabp.pitt.edu/NSABP_Pathology.asp#2.%20Tissue%20Bank | SCR_004506 | National Surgical Adjuvant Breast Bowel Project Tissue Bank | 2026-09-03 05:01:36 | 0 | ||||
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Spanish National Tumour Bank Network Resource Report Resource Website |
Spanish National Tumour Bank Network (RRID:SCR_008707) | CNIO TBN | biomaterial supply resource, material resource, tissue bank | THIS RESOURCE IS NO LONGER IN SERVICE, documented August 29, 2016. The need to use human neoplastic tissue under ideal conditions is currently of particular importance due to the development molecular pathology techniques that allow large-scale studies of genetic expression that are also of clinical significance. The Tumour Bank Network (TBN), instigated and coordinated by the Molecular Pathology Programme (MMP) aims to respond to this need by the promoting of Tumour Banks in Spanish hospitals. This will be achieved through the application of homogeneous procedures for the collection, processing and storage of neoplastic and normal tissue samples in such a way as to make molecular studies possible, avoiding that avoid the intrinsic bias of multi-centre studies possible. These Hospital Tumour Banks are based within the Pathology Departments of the collaborating Hospitals, that are interconnected through a computer-based network. In this way, each Centre''s tissue remains in the Hospital itself, thereby playing a key role in the development of the welfare, teaching and research activities within the Hospital. At the same time, it represents a tool to encourage of multi-hospital cancer research and of cooperation between basic and clinical researchers, constituting important collaboration between biomedical disciplines. The design does not correspond to a Central Tumour Bank, but that of a cooperative and coordinated Network of Hospital Banks, based on simple, homogeneous and optimal tissue treatment protocols. This Network is promoted by the Centro Nacional de Investigaciones Oncologicas (CNIO), which thereby undertakes the work of coordinating the network, using and maintaining the database, adhering to quality control. The aim of the CNIO's TBN is to acquire neoplastic and control non-neoplastic material of all types of malignant neoplasias, in the form of tissue fixed in formalin and paraffin embedded, of samples that are unfixed or frozen according to conventional methods as set out in Annexe 1 and even, exceptionally as fresh tissue. When other types of samples are required to carry out a specific project, the central office of the TBN will draw up a protocol with the group leading the project for the collection and maintenance of the tissue and clinicopathological data required for the proposed research. These protocols will be disseminated among the Associated Hospitals in order to gather the previously agreed number cases. Basic data surrounding the processing and preservation conditions for each case will be sent to the central office of the Bank, which under no circumstances will reveal the identity of the patient. Any Spanish cancer research team will be able to request tissue from the Tissue Bank Network. Absolute priority will be afforded to projects whose principal researcher belongs to one of the Associated Centres of the TNB, to other institutions with special agreements concerning the exchange of samples, and to the CNIO's researchers. | clinical, neoplastic tissue, non-neoplastic tissue, tissue, fixed, formalin, paraffin embedded, unfixed, frozen, tumor, cancer, normal control |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Spanish National Cancer Research Center |
Tumor, Cancer, Normal control | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_10273 | http://www.cnio.es/ing/programas/progTumor01.asp | SCR_008707 | Spanish National Cancer Centre Tumour Bank Network, Spanish National Cancer Research Center Tumor Bank Network, Centro Nacional de Investigaciones Oncologicas Tumor Bank Network, Centro Nacional de Investigaciones Oncologicas Tumour Bank Network, CNIO Tumor Bank Network, CNIO Tumour Bank Network, Spanish National Cancer Center Tumor Bank Network | 2026-09-03 05:03:15 | 0 | |||||
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Layton Center Clinical Data Resources Resource Report Resource Website |
Layton Center Clinical Data Resources (RRID:SCR_008822) | data or information resource, database | A database housing longitudinal relational research data from over 4,000 research subjects. The database includes the following types of data: physical and neurological exam findings, neurocognitive test scores, personal and family history of dementia, personal demographic genotypes (APOE, HLA), age at service evaluations, age at onset, age at death, clinical diagnosis, neuropathology diagnosis, tissue inventory information (when available), health status, medications, laboratory tests, and MRI data. | clinical data, alzheimer's disease, dementia, genotype, late adult human, longitudinal, clinical, mri |
is related to: Oregon Brain Bank has parent organization: OHSU Layton Aging and Alzheimer's Disease Center |
Aging, Alzheimer's disease | Researchers must submit a request | nlx_144446 | SCR_008822 | Layton Aging and Alzheimer's Disease Center Clinical Data Resources | 2026-09-03 05:02:49 | 0 | |||||||
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Vaccine damage reports database Resource Report Resource Website |
Vaccine damage reports database (RRID:SCR_010740) | Vaccine damage reports database | data or information resource, database | Database of case reports of adverse reactions to vaccinations. There are 806 reports (May 2013). If you would like to report a case, please go to report your own vaccine reaction. The user may search by keywords or sort by vaccine, country, age, outcome, gender and hospital admission. | vaccine, adverse reaction, clinical, male, female, child, adult | Adverse reaction to vaccine, Aging | The community can contribute to this resource | nlx_97470 | SCR_010740 | Vaccine damages database, Adverse reaction/vaccine damage database | 2026-09-03 05:03:25 | 0 | |||||||
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BWH Specimen Bank Resource Report Resource Website |
BWH Specimen Bank (RRID:SCR_012316) | BWH Specimen Bank | biomaterial supply resource, material resource, tissue bank |
Core facility that provides the following services: Open repositories service, Sample processing service, Medical/pathology informatics support service, BWH tissue repository service. The Specimen Bank provides materials to investigators with IRB-approved protocols. Staff are available to assist with selection of samples appropriate for downstream applications, development of processing protocols or preparation of derivatives from clinical materials. IT Staff are also available to assist researchers with creation of queries for prospective sample collection or queries to select samples from specific cohorts. Their goal is to drive quality research in an efficient and cost-effective manner. Each year they provide tens of thousands of samples to area researchers. Getting started: Partners investigators and study staff may request a Crimson user account to help manage studies and collected materials. |
clinical sample processing, clinical sample, clinical study management tool, clinical testing service, diagnostics development, microbial isolates service, tissue procurement, clinical |
is listed by: One Mind Biospecimen Bank Listing is listed by: ScienceExchange is listed by: Eagle I is listed by: Brigham and Women's Hospital Labs and Facilities |
SciEx_11650 | http://harvard.eagle-i.net/i/0000012e-5957-2b52-55da-381e80000000 | http://crimson.bwh.harvard.edu/ | SCR_012316 | Brigham and Women''''s Hospital Specimen Bank, Specimen Bank (BWH) | 2026-09-03 05:03:04 | 0 | ||||||
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UCSC Cancer Genomics Browser Resource Report Resource Website 500+ mentions |
UCSC Cancer Genomics Browser (RRID:SCR_011796) | Cancer Genomics Browser | data or information resource, database, service resource | A suite of web-based tools to visualize, integrate and analyze cancer genomics and its associated clinical data. It is possible to display your own clinical data within one of their datasets. | genome, genomics, clinical, next-generation sequencing, chromosome, gene, FASEB list |
is listed by: OMICtools has parent organization: University of California at Santa Cruz; California; USA |
Cancer | NCI ; NHGRI ; American Association for Cancer Research ; UCSF Comprehensive Cancer Center ; California Institute for Quantitative Biosciences |
PMID:23109555 PMID:21059681 PMID:19333237 |
Acknowledgement requested | OMICS_00925 | SCR_011796 | 2026-09-03 05:03:14 | 589 |
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Welcome to the NIF Resources search. From here you can search through a compilation of resources used by NIF and see how data is organized within our community.
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Welcome to the Neuroscience Information Framework Project, designed to serve the biomedical research community. NIF maintains the largest searchable collection of neuroscience data, the largest catalog of biomedical resources, and the largest ontology for neuroscience on the web. We welcome all feedback and suggestions and are actively looking for resource providers to make their resources accessible through NIF. Learn about the tools available to help you share your data and discover a dynamic inventory of Web-based neuroscience resources.
