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| Resource Name | Proper Citation | Abbreviations | Resource Type |
Description |
Keywords | Resource Relationships | ||||||||||||||
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Joseph and Kathleen Bryan Alzheimer's Disease Research Center Resource Report Resource Website |
Joseph and Kathleen Bryan Alzheimer's Disease Research Center (RRID:SCR_005025) | data or information resource, disease-related portal, patient-support portal, portal, research forum portal, topical portal | An Alzheimer's disease center (ADC) that offers support services for families caring for persons with memory disorders, community outreach and education programs, in addition to its clinical and basic research activities. Information on current scientific and clinical findings is offered to the general public, medical and scientific community. An important emphasis of the Bryan ADRC is to advance basic medical discovery concerning AD and related dementias. This basic science mission is facilitated through the DNA cell repository located in the Institute of Genome Sciences and Policy (IGSP) and the Bryan ADRC brain donation program of the Kathleen Price Bryan Brain Bank. These affiliated Bryan ADRC programs provide a source of fresh brain tissue. | alzheimer's disease, memory disorder, clinical trial, dementia, human brain |
has parent organization: Duke University School of Medicine; North Carolina; USA is parent organization of: Duke University Kathleen Price Bryan Brain Bank |
Alzheimer's disease, Memory disorder, Dementia | NIA | Public, Samples are available to the research community | nlx_144012 | SCR_005025 | SciCrunch Registry | Bryan Alzheimer's Disease Research Center, Joseph & Kathleen Bryan Alzheimer's Disease Research Center, Bryan ADRC, Joseph and Kathleen Bryan Alzheimer's Disease Research Center | 2026-10-24 12:45:19 | 0 | ||||||
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Florida Brain Bank Resource Report Resource Website |
Florida Brain Bank (RRID:SCR_004936) | biomaterial supply resource, brain bank, material resource, tissue bank | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on January 11, 2023. A service and research oriented network of statewide regional brain bank sites. The intent of the brain bank program is to study brains of persons clinically diagnosed with dementia and provide tissue for research after their deaths. Mt. Sinai Medical Center contracts annually with the State of Florida to operate the primary brain bank. Coordinators at regional brain bank sites in Orlando, Tampa and Pensacola assist in recruiting participants and act as liaisons between the brain bank and participant families. Alzheimer's disease respite care program providers, memory disorder clinics, and model day care programs also recruit brain bank participants. The Florida Brain Bank supports collaborative research programs related to Alzheimer's disease and other degenerative disorders of the brain. | post-mortem, tissue, brain, alzheimer's disease, dementia, clinical, mild cognitive impairment, florida, brain bank, degenerative brain disorder |
is listed by: One Mind Biospecimen Bank Listing has parent organization: State of Florida Alzheimer's Disease Initiative has parent organization: Wien Center For Alzheimer's Disease and Memory Disorders |
Alzheimer's disease, Dementia, Mild Cognitive Impairment | State of Florida Department of Elder Affairs | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_143950 | http://elderaffairs.state.fl.us/english/BrainBank/index.php | SCR_004936 | SciCrunch Registry | State of Florida Brain Bank, Florida Alzheimer's Disease Brain Bank | 2026-10-24 12:45:18 | 0 | |||||
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PheKB Resource Report Resource Website 10+ mentions |
PheKB (RRID:SCR_005292) | PheKB | knowledge environment, software repository, software resource | Collaborative environment of building and validating electronic phenotype algorithms using electronic medical records (EMRs) and natural language processing (NLP) for use in genome-wide association studies (GWAS). On this site you can: View existing algorithms, Enter or create new algorithms, Collaborate with others to create or review algorithms, View implementation details for existing algorithms. The Electronic Medical Records and Genomics Network (eMERGE) has investigated whether data captured through routine clinical care using electronic medical records (EMRs) can identify disease phenotypes with sufficient positive and negative predictive values for use in genome-wide association studies (GWAS). Most EMRs captured key information (diagnoses, medications, laboratory tests) used to define phenotypes in a structured format; in addition, natural language processing has also been shown to improve case identification rates. PheKB is an outgrowth of that validation effort. Phenotype algorithms can be viewed by data modalities or methods used: CPT codes, ICD 10 codes, ICD 9 codes, Laboratories, Medications, Vital Signs, Natural Language Processing Algorithms can also be viewed by: * Implementation results (positive predictive value, sensitivity, publications) * Institution * Work Group | phenotype, electronic medical record, medical record, human, clinical, white blood cell, red blood cell, lipid, algorithm, height, cardiac conduction, genome-wide association study, natural language processing |
is related to: eMERGE Network: electronic Medical Records and Genomics has parent organization: Vanderbilt University; Tennessee; USA |
Atrial fibrillation, Crohn''''s disease, Multiple Sclerosis, Rheumatoid arthritis, Type 2 diabetes mellitus, Dementia, Cataracts, Hypothyroidism, Diabetic Retinopathy, High-Density Lipoprotein, Peripheral Arterial Disease | PMID:20362271 | nlx_144339 | SCR_005292 | SciCrunch Registry | Phenotype KnowledgeBase, PheKB - a knowledgebase for discovering phenotypes from electronic medical records | 2026-10-24 12:45:24 | 32 | ||||||
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BrainNet Europe Sampling Protocols Resource Report Resource Website |
BrainNet Europe Sampling Protocols (RRID:SCR_000484) | BNE Sampling protocols | protocol | Sampling protocols produced by the BrainNet Europe Consortium generally with five types of dissection and brain processing procedures defined in all disease related protocols. * Fresh brain dissection * Fresh brain processing * Dissection of formalin-fixed brain * Histology and immunohistochemistry * Processing fresh brain | dna preservation, rna preservation, protein preservation, macrodissection, microdissection, tissue sampling, brain banking, dissection, brain processing, brain, fresh, formalin-fixed, histology, immunohistochemistry | has parent organization: BrainNet Europe | Dementia, Depressive Disorder, Schizophrenia, Motor Neuron Disease, Neurodegenerative disease | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_158157 | SCR_000484 | SciCrunch Registry | 2026-10-24 12:44:17 | 0 | |||||||
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Alzheimer Society of Canada Resource Report Resource Website 1+ mentions |
Alzheimer Society of Canada (RRID:SCR_000485) | institution | A nonprofit health organization that works to improve the quality of life of Canadians affected by Alzheimer's disease and other dementias. This organization also supports research on the cause and potential cures for the disease through education and funding. | dementia, alzheimer's, disease, research, funding, nonprofit, canada | Alzheimer's disease, Dementia | ISNI: 0000 0001 0702 2390, Crossref funder ID: 501100000143, nlx_158162, Wikidata: Q4738828, grid.453286.e | https://ror.org/03benss35 | SCR_000485 | SciCrunch Registry | 2026-10-24 12:44:17 | 2 | |||||||||
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SIU CADRD Dementia Brain Autopsy Program Resource Report Resource Website |
SIU CADRD Dementia Brain Autopsy Program (RRID:SCR_006918) | biomaterial supply resource, brain bank, material resource, tissue bank | A brain autopsy program developed to serve the needs of Illinois families and individuals affected by dementing diseases and to advance dementia research by providing tissue to researchers studying dementing diseases. The SIU School of Medicine (SIU-SM) Dementia Brain Autopsy Program facilitates the postmortem process for families wishing to obtain an autopsy for a loved one. A brain autopsy provides family members with accurate information regarding the exact nature of their relative's dementia. This includes information about the possibility of an inherited disorder which may affect other family members. The brain autopsy also helps clinicians improve their clinical skills by identifying the precise cause of the clinical dementia. | post mortem, autopsy, brain tissue, brain, tissue, dementia, dementing disease, alzheimer's disease |
is listed by: One Mind Biospecimen Bank Listing has parent organization: SIU Center for Alzheimer's Disease and Related Disorders |
Dementia, Dementing disease, Alzheimer's disease | The Dementia Brain Autopsy Program is on hold due to lack of funding, Check back periodically to see if the program has been re-instituted, Available to the research community | nlx_144049 | SCR_006918 | SciCrunch Registry | Dementia Brain Autopsy Program, SIU-SM Dementia Brain Autopsy Program, SIU School of Medicine Dementia Brain Autopsy Program, SIU Dementia Brain Autopsy Program | 2026-10-24 12:45:51 | 0 | |||||||
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University of Pittsburgh Alzheimer Disease Research Center Resource Report Resource Website 100+ mentions |
University of Pittsburgh Alzheimer Disease Research Center (RRID:SCR_008084) | ADRC | data or information resource, disease-related portal, portal, topical portal | A research center associated with the University of Pittsburgh that specializes in the diagnosis of Alzheimer's disease and related disorders. The overall objective of the ADRC is to study the pathophysiology of Alzheimer's disease, with the aim of improving the reliability of diagnosis of Alzheimer's and developing effective treatment strategies. Current research foci emphasize neuropsychiatry and neuropsychology, molecular genetics and epidemiology, basic neuroscience, and structural and functional imaging that aid in the diagnosis and treatment of Alzheimer's disease. Specific services at the ADRC include: comprehensive diagnostic evaluation of patients with suspected Alzheimer's disease and other forms of dementia; evaluation of memory, language, judgment, and other cognitive abilities; and education and counseling for patients and families. | african american, alzheimer's disease, assessment, clinical, cognitive, dementia, diagnosis, diagnostic evaluation, human, medical, mild cognitive impairment, neurological, pathophysiology, psychiatric | has parent organization: University of Pittsburgh; Pennsylvania; USA | Alzheimer's disease, Mild Cognitive Impairment, Dementia, Aging | NIA | Public | nif-0000-10750 | SCR_008084 | SciCrunch Registry | University of Pittsburgh Alzheimer's Disease Research Center | 2026-10-24 12:46:02 | 494 | |||||
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Comprehensive Neuroscience Center Resource Report Resource Website |
Comprehensive Neuroscience Center (RRID:SCR_008705) | CNC | analysis service resource, behavioral analysis service, data or information resource, organization portal, portal, production service resource, service resource | THIS RESOURCE IS NO LONGER IN SERVICE, documented on July 08, 2014. A multi-disciplinary institute providing specialized diagnostic evaluations, innovative treatments, education and research. It provides a collaborative, team-centered approach to provide innovative diagnostics to assist in developing cutting-edge brain based interventions and treatment strategies to best serve their patient's individual needs. Comprehensive Neuroscience Center is dedicated to working with children and adults who demonstrate neurodevelopmental disorders such as Autism Spectrum Disorders, Attention Deficits Hyperactivity Disorder, Learning Disabilities and Language-based deficits, as well as other neurological-based disorders including Traumatic brain injury, Disorders of Consciousness, Disorders of Aging, Alzheimer's and Dementia. | neuroscience, treatment, diagnostics, diagnosis, neurodevelopmental, disorder, autism, hyperactivty, disability, neurological, traumatic brain injury, consciousness, alzheimer's, dementia, adult human, child, intervention | Neurodevelopmental disorder, Autism Spectrum Disorder, Attention deficit-hyperactivity disorder, Learning Disability, Language-based deficit, Neurological-based disorder, Traumatic brain injury, Disorder of Consciousness, Disorder of Aging, Alzheimer's disease, Dementia | THIS RESOURCE IS NO LONGER IN SERVICE | nif-0000-37854 | SCR_008705 | SciCrunch Registry | 2026-10-24 12:46:09 | 0 | ||||||||
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Johns Hopkins Alzheimer's Disease Research Center Resource Report Resource Website |
Johns Hopkins Alzheimer's Disease Research Center (RRID:SCR_008757) | biomaterial supply resource, brain bank, material resource, tissue bank | A Alzheimer's Disease Research Center (ADRC) whose goal is to conduct basic and clinical research aimed at understanding Alzheimer's disease. The Center enrolls a variety of individuals for clinical trials, evaluation and follow-up, including: normal control subjects, individuals with mild memory problems, and patients diagnosed with Alzheimer's Disease or related dementias. Researchers can request data and specimens obtained from ADRC subjects. These include blood or DNA, brain specimens, and cross-sectional or longitudinal clinical and cognitive data, all from ADRC subjects. | alzheimer's disease, mild memory problem, dementia, clinical data, cognitive data, blood, dna, brain, tissue, human, clinical trial, memory |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Johns Hopkins University School of Medicine; Baltimore, Maryland; USA |
Alzheimer's disease, Normal control, Mild memory problem, Dementia, Aging | NIA | Public, Researchers can request data and specimens obtained from ADRC subjects | nlx_144105 | SCR_008757 | SciCrunch Registry | Johns Hopkins ADRC, Johns Hopkins Alzheimer's Disease Research Center | 2026-10-24 12:46:13 | 0 | ||||||
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Mayo Clinic Jacksonville: Neuropathology and Microscopy Resource Report Resource Website 1+ mentions |
Mayo Clinic Jacksonville: Neuropathology and Microscopy (RRID:SCR_008753) | biomaterial supply resource, brain bank, material resource, tissue bank | A brain bank and laboratory focused on memory and motor disorders. Brains are sent to the laboratory for diagnosis and research for the State of Florida Alzheimer Disease Initiative and for the Society for Progressive Supranuclear Palsy. As part of this brain banking function, fixed and frozen brain samples are obtained at autopsy and sent to the laboratory for diagnostic evaluation and for various types of research studies. The major types of analyses performed on the brain samples include neuro-histology, immunohistochemistry, confocal microscopy, electron microscopy and image analysis, as well as immunoassays. The latter are based upon Western blotting and enzyme linked immunoassays. The laboratory has a specific interest in the interface between normal aging and Alzheimer's disease, as well as in non-Alzheimer's degenerative disorders such as Lewy body dementia, corticobasal degeneration, progressive supranuclear palsy and frontotemporal dementia. The primary focus of research on aging is neuropathologic characterization of brains of individuals who had been prospectively and longitudinally evaluated during life. These studies aim to determine differences in a range of biologic parameters in brains of people with normal cognitive, mild cognitive impairment and dementia. Their focus on Parkinson's disease is to identify preclinical Parkinson's disease in order to develop means for early diagnosis. | tissue, brain, fixed, frozen, alzheimer's disease, normal aging, memory disorder, motor disorder, parkinson's disease, progressive supranuclear palsy, lewy body disease, corticobasal degeneration, frontotemporal dementia, dementia, mild cognitive impairment, mouse, neurofibrillary degeneration, postmortem, normal control, autopsy |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Mayo Clinic Florida; Florida; USA has parent organization: Mayo Alzheimer's Disease Research Center has parent organization: Florida Alzheimer's Disease Research Center |
Alzheimer's disease, Aging, Memory disorder, Motor disorder, Parkinson's disease, Progressive Supranuclear Palsy, Lewy Body Disease, Corticobasal Degeneration, Frontotemporal dementia, Dementia, Mild Cognitive Impairment | NIA P50-AG16574; NIA P50-AG25711; NINDS P50-40256 |
nlx_143952 | SCR_008753 | SciCrunch Registry | Mayo Clinic Jacksonville: Neuropathology Microscopy, Mayo Clinic Florida: Neuropathology and Microscopy, Neuropathology and Microscopy - Dennis W. Dickson, Mayo Clinic Florida: Neuropathology and Microscopy - Dennis W. Dickson | 2026-10-24 12:46:13 | 1 | |||||||
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Michigan Alzheimer's Disease Center Brain Bank Resource Report Resource Website |
Michigan Alzheimer's Disease Center Brain Bank (RRID:SCR_008774) | MADC | biomaterial supply resource, brain bank, material resource, tissue bank | An organization that provides scientists with human tissue from Alzheimer's patients and patients with related brain disorders. Brain tissue is collected from research studies at the University of Michigan, as well as other research centers, and are donated by the families of the patients or the participants themselves. Tissues that are present in the Brain Bank are pre-characterized by pathologists and can be provided to researchers upon request. | alzheimer's disease, dementia, late adult human, brain, tissue, brain tissue, autopsy, brain donation, clinical data |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Michigan Alzheimer's Disease Center |
Alzheimer's disease, Dementia, Aging | Available to research staff upon request | nlx_144107 | http://www.med.umich.edu/alzheimers/research/brain_bank.htm | SCR_008774 | SciCrunch Registry | MADC Brain Bank | 2026-10-24 12:46:13 | 0 | |||||
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MUSC Center on Aging Campbell Neuropathology Laboratory Resource Report Resource Website 1+ mentions |
MUSC Center on Aging Campbell Neuropathology Laboratory (RRID:SCR_008826) | MUSC Center on Aging Neuropathology Lab | biomaterial supply resource, brain bank, material resource, tissue bank | A brain bank and biospecimen repository that provides research materials to clinicians, scientists and pathologists in South Carolina. The bank provides both control and diseased biospecimens and brain tissue needed for research in Alzheimer's disease, Parkinson's disease and other related neurological disorders. The Campbell Laboratory coordinates the brain tissue donation program, provides post-mortem confirmation of a patient having neurological disorders, and leads research trials. Any South Carolina resident can choose to sign up as a tissue donor and have their brain tissue donated post-mortem to be used for neurological disorder research. The tissue bank will process and analyze these tissue samples and send the results to the deceased person's family. | brain tissue, brain, tissue, alzheimer's disease, parkinson's disease, neurological disorder, stroke, dementia, normal control, late adult human, clinical trial |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Medical University of South Carolina Center on Aging |
Alzheimer's disease, Parkinson's disease, Neurological disorder, Stroke, Aging, Dementia | Account required | nlx_144505 | http://academicdepartments.musc.edu/brainbank/ | SCR_008826 | SciCrunch Registry | MUSC Center on Aging Carroll A. Campbell Jr. Neuropathology Laboratory, Carroll A. Campbell Jr. Neuropathology Laboratory (Brain Bank), Medical University of South Carolina Center on Aging Carroll A. Campbell Jr. Neuropathology Laboratory, Carroll A. Campbell Jr. Neuropathology Laboratory at MUSC, Carroll A. Campbell Jr. Neuropathology Laboratory | 2026-10-24 12:46:11 | 2 | |||||
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NIMH Brain Tissue Collection Resource Report Resource Website 1+ mentions |
NIMH Brain Tissue Collection (RRID:SCR_008726) | NIMH Brain Bank | biomaterial supply resource, brain bank, material resource, tissue bank | A collection of brain tissue from individuals suffering from schizophrenia, bipolar disorder, depression, anxiety disorders, and substance abuse, as well as healthy individuals. The research mission of the NIMH Brain Bank is to better understand the underlying biological mechanisms and pathways that contribute to schizophrenia and other neuropsychiatric disorders, as well as to study normal human brain development. | schizophrenia, bipolar disorder, depressive disorder, anxiety disorder, substance abuse, healthy, neurological disorder, mental disease, suicide, tourette's syndrome, dementia, brain development, brain, brain tissue, tissue, post-mortem, normal control, ClinicalTrials.gov Identifier: NCT00001260 |
is listed by: One Mind Biospecimen Bank Listing has parent organization: NIMH Intramural Research Program Clinical Brain Disorders Branch |
Schizophrenia, Bipolar Disorder, Depressiive Disorder, Anxiety Disorder, Drug Abuse, Healthy, Neurological disorder, Mental disease, Suicide, Tourette's Syndrome, Dementia, Normal control, Aging | NIMH | Samples available to investigators approved by an NIMH Oversight Committee, Molecular and genetic data available to the scientific community | nlx_143684 | http://cbdb.nimh.nih.gov/neuropath.htm | SCR_008726 | SciCrunch Registry | 2026-10-24 12:49:09 | 1 | |||||
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UT Southwestern ADC Brain Tissue Donation Program Resource Report Resource Website |
UT Southwestern ADC Brain Tissue Donation Program (RRID:SCR_008837) | UTSW Brain Tissue Donation Program, UTSW ADC Brain Tissue Donation Program | biomaterial supply resource, brain bank, material resource, tissue bank | Brain tissue donation program at the UT Southwestern Memory Clinic that aims to utilize these contributions for research on Alzheimer's. Diagnosis of Alzheimer's disease or other dementias are made through autopsy, the results of which are available to family members. | brain tissue, tissue, brain, alzheimer's disease, late adult human, mild cognitive impairment, dementia, frontotemporal dementia, autopsy, research |
is listed by: One Mind Biospecimen Bank Listing has parent organization: University of Texas Southwestern Medical Center - Alzheimer's Disease Center |
Alzheimer's disease, Mild Cognitive Impairment, Aging, Dementia, Frontotemporal Dementia | Private | nlx_144639 | SCR_008837 | SciCrunch Registry | 2026-10-24 12:49:09 | 0 | |||||||
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Northwestern CNADC Tissue Bank / Neuropathology Core Resource Report Resource Website |
Northwestern CNADC Tissue Bank / Neuropathology Core (RRID:SCR_013178) | biomaterial supply resource, brain bank, material resource, tissue bank | Tissue bank for collecting, cataloging and storing postmortem brain tissue samples from subjects with and without neurological disorders. Specimens are available for research on cognitive impairment, Alzheimer's, dementia and other disorders along with clinical data such as demographic information, health and family history and neuropsychological test scores. The bank provides services to distribute postmortem brain tissue and other samples to investigators for use in research that will provide qualitative and quantitative diagnostic information to physicians, families, and researchers. | brain tissue, brain, tissue, plasma, blood, dna, cerebral spinal fluid, paraformaldehyde-fixed, frozen, paraffin block, unfixed, late adult human, autopsy, post-mortem, clinical dementia rating scale, mini mental state examination, neuropathology, clinical data, alzheimer's disease, dementia, normal control, non-demented control, dementia with lewy body, frontotemporal lobar degeneration, pick disease, corticobasal degeneration, tauopathy, progressive supranuclear palsy, tangle-predominant senile dementia, amyotrophic lateral sclerosis, motor neuron disease, vascular dementia, mild cognitive impairment, research, brain bank, tissue |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Northwestern University Cognitive Neurology and Alzheimers Disease Center |
Alzheimer's disease, Dementia, Dementia with Lewy body, Frontotemporal lobar degeneration, Pick disease, Corticobasal degeneration, Tauopathy, Progressive Supranuclear Palsy, Tangle-predominant senile dementia, Amyotrophic Lateral Sclerosis, Motor Neuron Disease, Vascular dementia, Mild cognitive impairment, Aging | NIA P30 AG13854 | Available to the research community | nlx_144054 | http://www.brain.northwestern.edu/mdad/neuropathology.html | SCR_013178 | SciCrunch Registry | Northwestern University Cognitive Neurology and Alzheimer's Disease Center Tissue/Neuropathology Core, Northwestern University CNADC Tissue/Neuropathology Core, Northwestern's Cognitive Neurology and Alzheimers Disease Center Tissue/Neuropathology Core, Northwestern Tissue/Neuropathology Core, Northwestern Neuropathology Core of CNADC, Northwestern Cognitive Neurology and Alzheimer's Disease Center Tissue/Neuropathology Core, Northwestern Cognitive Neurology Alzheimer's Disease Center Tissue/Neuropathology Core, Northwestern CNADC Tissue / Neuropathology Core, Northwestern University CNADC Tissue / Neuropathology Core | 2026-10-24 12:47:01 | 0 | |||||
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SIU Center for Alzheimer's Disease and Related Disorders Resource Report Resource Website |
SIU Center for Alzheimer's Disease and Related Disorders (RRID:SCR_013199) | SIU CADRD | data or information resource, disease-related portal, patient-support portal, portal, service resource, topical portal, training service resource | Resource center that provides assistance for patients and families affected by Alzheimer's disease and related conditions. The Center provides patient care through the Memory and Aging Clinic as well as through research, education and service to the community. Additionally the Center provides training in dementia care, maintains centralized data collection, and sponsors programs of research that qualify for federal financial participation. | alzheimer's disease, dementia, clinical trial, clinical, late adult human, research, patient care, education, training service |
has parent organization: Southern Illinois University School of Medicine; Illinois; USA is parent organization of: SIU CADRD Dementia Brain Autopsy Program |
Alzheimer's disease, Dementia, Aging | Public | nlx_144045 | SCR_013199 | SciCrunch Registry | SIU School of Medicine Center for Alzheimer's Disease and Related Disorders | 2026-10-24 12:47:02 | 0 | ||||||
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Hungarian Neurological-Psychiatric Biobank Resource Report Resource Website |
Hungarian Neurological-Psychiatric Biobank (RRID:SCR_003715) | NEPSYBANK | biomaterial supply resource, material resource, tissue bank | The Hungarian Society of Clinical Neurgenetics established a nationwide collaboration for prospective collection of human biological materials and databases from patient with neurological and psychiatric diseases. The basic triangle of the NEPSYBANK is the sample, the information and the study management. The present participants of the NEPSYBANK are the Department of Neurology and Psychiatry of the four Medical Universities (in Budapest, Debrecen, Pecs, Szeged) and the National Institute of Psychiatry and Neurology in Budapest. The NEPSYBANK is a disease based biobank collecting both phenotypical and environmental data and biological materials such as DNA/RNA, whole blood, plasma, cerebral spinal fluid, muscle / nerve / skin biopsy, brain, and fibroblast. The target of the diseases is presently (Phase I): stroke syndromes, dementias, movement disorders, motoneuron diseases, epilepsy, multiple sclerosis, schizophrenia, alcohol addiction. In the near future (Phase II.) it is planned to enlarge the scale with headaches, disorders of the peripheral nerves, disorders of neuromuscular transmission, disorders of skeletal muscle, depression, anxiety. DNA/RNA is usually extracted from whole blood, but occasionally different tissues such as muscle, brain etc. can be used as well. The extracting procedures differ among the institutes, but in all cases the concentration and the quality of the DNA/RNA must be registered in the database. Participating institutional biobanks have committed themselves to follow common quality standards, which provide access to samples after prioritization on scientific grounds only. In every case the following data are registered. 1. General data: main bank categories, age, sex, ethnicity, body height, body weight, economic stats, education, type of place of living, marital status, birth complications, alcohol, drugs, smoking. 2. Sample properties (sample ID, type of sample, date of extraction, concentration, and level of purity). General patient data as blood pressure, heart rate, internal medical status, ECG, additional diseases. Disease specific question e.g. in schizophrenia the diagnosis after DSMIV and ICD 10, detailed diagnostic questions after both classification, detailed psychiatric and neurological status, laboratory findings, rating scales, data of neuroimaging, genetic tests, applied medication (with generic name, dose, duration), adverse drug effects and other treatments. The Biobank Information Management System (BIMS) is responsible for linkage of databases containing information on the individual sample donors. If you want to have samples from the NEPSYBANK an application must be submitted containing the following information: short research plan including aims and study design, ethic application with a positive decision, specific demands regarding the right of disposition, agreements with grant organizations which regulate immaterial property, information about financing (academic grants, support from industry). All participants have the right to withdraw their samples through a simple order. | neurology, psychiatry, genomic, gene, genetic, disease, phenotype, clinical data, environment, dna, rna, whole blood, plasma, cerebral spinal fluid, muscle, biopsy, nerve, skin, brain, fibroblast, tissue, blood, frozen, liquid nitrogen, neurological disease, psychiatric disease, stroke, dementia, movement disorder, motor neuron disease, epilepsy, multiple sclerosis, schizophrenia, alcohol, addiction, alcohol addiction, headache, peripheral nerve disorder, neuromuscular transmission disorder, skeletal muscle disorder, depressive disorder, anxiety | is listed by: One Mind Biospecimen Bank Listing | Neurological disease, Psychiatric disease, Stroke, Dementia, Movement disorder, Motor Neuron Disease, Epilepsy, Multiple Sclerosis, Schizophrenia, Alcohol addiction, Headache, Peripheral nerve disorder, Neuromuscular transmission disorder, Skeletal muscle disorder, Depressive Disorder, Anxiety | PMID:17448454 | Public: if you want to have samples from the NEPSYBANK an application must be submitted. | nlx_13478 | SCR_003715 | SciCrunch Registry | Hungarian Neurological - Psychiatric Biobank, Hungarian Neurological - Psychiatric Biobank - NEPSYBANK | 2026-10-24 12:50:27 | 0 | |||||
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NeuroBiobank Munich Resource Report Resource Website 10+ mentions |
NeuroBiobank Munich (RRID:SCR_005014) | NBM | biomaterial supply resource, material resource, tissue bank | A brain bank which collects brain tissue from patients who died from various neurological and psychiatric diseases. These tissues are available for biochemical, molecular biological, and other work groups with the aim of supporting research on the pathogenesis, diagnosis, and therapy of these diseases. Collected brains are clinically and neuropathologically well-characterized. The collection and distribution of brain tissue samples is an ongoing process. NeuroBiobank Munich offers help with the organization and implementation of autopsies as well as with the neuropathologic diagnostics. The thematic emphasis of the NeuroBiobank Munich is Parkinson's disease and demential degenerative disorders such as Alzheimer's disease or Creutzfeldt-Jakob disease. NeuroBiobank Munich coordinates the German national brain tissue bank (BrainNet) and the European brain tissue bank (BrainNet Europe). | brain, tissue, brain bank, neurological disease, mental disease, parkinson's disease, alzheimer's disease, creutzfeldt-jakob syndrome, post mortem, neurodegenerative disease, dementia |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Ludwig-Maximilians-University; Munich; Germany |
Parkinson's disease, Alzheimer's disease, Creutzfeldt-Jakob Syndrome, Neurodegenerative disease, Dementia | Public | nlx_144006 | SCR_005014 | SciCrunch Registry | ZNP Biobank | 2026-10-24 12:50:32 | 26 | ||||||
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Dementia Brain Bank Research Program Resource Report Resource Website |
Dementia Brain Bank Research Program (RRID:SCR_005129) | biomaterial supply resource, material resource, tissue bank | A brain bank which has obtained brains from individuals who suffered from some form of dementia. Clinical records and a family history are obtained for each donor in order to better understand each dementing illness and to work towards the improvement of diagnosing, treating, and preventing these diseases. | dementia, clinical data, family history, alzheimer's disease, brain, tissue |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Regions Hospital Alzheimer's Research Center |
Dementia, Alzheimer's disease | nlx_144137 | SCR_005129 | SciCrunch Registry | Brain Bank Research Program | 2026-10-24 12:50:32 | 0 | ||||||||
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University of Kentucky's Alzheimer's Disease Center Resource Report Resource Website 1+ mentions |
University of Kentucky's Alzheimer's Disease Center (RRID:SCR_008766) | UK-ADC, UK ADC | biomaterial supply resource, material resource, tissue bank | An organization which includes a tissue bank, a database, study design consultation, clinical resources, and a community registry database. The UK-ADC shares data with the NIA national database (NACC), as well as with independent, qualified investigators both within and outside the UK-ADC. This resource's associated tissue bank is comprised of anonymized brain tissue, blood, and cerebrospinal fluid samples from patients in the clinic, as well as frozen post-mortem brain tissue samples. This organization also shares research resources with the National Alzheimer's Coordinating Center (NACC), NACC collaborative initiatives, the Alzheimer's Disease Neuroimaging Initiative (ADNI), other Alzheimer Disease Centers (ADCs), and any qualified investigators from either the University of Kentucky or the general scientific community. | post-mortem, brain, brain tissue, cerebral spinal fluid, serum, plasma, buffy coat, blood, alzheimer's disease, dementing disorder, mild cognitive impairment, dementia, frozen, formalin fixed, paraffin embedded slide, clinical, neuropathology, neuropathologic disease, neuropathologic diagnosis, clinical, registry |
is listed by: One Mind Biospecimen Bank Listing has parent organization: University of Kentucky Alzheimer's Disease Center |
Alzheimer's disease, Dementing disorder, Dementia, Neuropathologic diagnosis | NIA P30 AG028383 | Public | nlx_144056 | http://www.mc.uky.edu/coa/clinicalcore/alzheimercenter.html#neuropathology, http://www.mc.uky.edu/coa/clinicalcore/Neuropathology%20Core.html | SCR_008766 | SciCrunch Registry | University of Kentucky Alzheimer's Disease Center Biospecimen Data or Clinical Request, UK-Alzheimer's Disease Center Biospecimen Data or Clinical Request | 2026-10-24 12:50:56 | 1 |
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Welcome to the Neuroscience Information Framework Project, designed to serve the biomedical research community. NIF maintains the largest searchable collection of neuroscience data, the largest catalog of biomedical resources, and the largest ontology for neuroscience on the web. We welcome all feedback and suggestions and are actively looking for resource providers to make their resources accessible through NIF. Learn about the tools available to help you share your data and discover a dynamic inventory of Web-based neuroscience resources.
