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Resource Name Proper Citation Abbreviations Resource Type Description Keywords Resource Relationships Related Condition Funding Defining Citation Availability Specification URL Alternate IDs Alternate URLs Old URLs Parent Organization Resource ID Synonyms Record Last Update Mentions Count
BrainNet Europe Sampling Protocols
 
Resource Report
Resource Website
BrainNet Europe Sampling Protocols (RRID:SCR_000484) BNE Sampling protocols protocol Sampling protocols produced by the BrainNet Europe Consortium generally with five types of dissection and brain processing procedures defined in all disease related protocols. * Fresh brain dissection * Fresh brain processing * Dissection of formalin-fixed brain * Histology and immunohistochemistry * Processing fresh brain dna preservation, rna preservation, protein preservation, macrodissection, microdissection, tissue sampling, brain banking, dissection, brain processing, brain, fresh, formalin-fixed, histology, immunohistochemistry has parent organization: BrainNet Europe Dementia, Depressive Disorder, Schizophrenia, Motor Neuron Disease, Neurodegenerative disease THIS RESOURCE IS NO LONGER IN SERVICE nlx_158157 SCR_000484 2026-08-29 11:20:38 0
Alzheimer Society of Canada
 
Resource Report
Resource Website
1+ mentions
Alzheimer Society of Canada (RRID:SCR_000485) institution A nonprofit health organization that works to improve the quality of life of Canadians affected by Alzheimer's disease and other dementias. This organization also supports research on the cause and potential cures for the disease through education and funding. dementia, alzheimer's, disease, research, funding, nonprofit, canada Alzheimer's disease, Dementia ISNI: 0000 0001 0702 2390, Crossref funder ID: 501100000143, nlx_158162, Wikidata: Q4738828, grid.453286.e https://ror.org/03benss35 SCR_000485 2026-08-29 11:20:26 2
Joseph and Kathleen Bryan Alzheimer's Disease Research Center
 
Resource Report
Resource Website
Joseph and Kathleen Bryan Alzheimer's Disease Research Center (RRID:SCR_005025) data or information resource, disease-related portal, patient-support portal, portal, research forum portal, topical portal An Alzheimer's disease center (ADC) that offers support services for families caring for persons with memory disorders, community outreach and education programs, in addition to its clinical and basic research activities. Information on current scientific and clinical findings is offered to the general public, medical and scientific community. An important emphasis of the Bryan ADRC is to advance basic medical discovery concerning AD and related dementias. This basic science mission is facilitated through the DNA cell repository located in the Institute of Genome Sciences and Policy (IGSP) and the Bryan ADRC brain donation program of the Kathleen Price Bryan Brain Bank. These affiliated Bryan ADRC programs provide a source of fresh brain tissue. alzheimer's disease, memory disorder, clinical trial, dementia, human brain has parent organization: Duke University School of Medicine; North Carolina; USA
is parent organization of: Duke University Kathleen Price Bryan Brain Bank
Alzheimer's disease, Memory disorder, Dementia NIA Public, Samples are available to the research community nlx_144012 SCR_005025 Bryan Alzheimer's Disease Research Center, Joseph & Kathleen Bryan Alzheimer's Disease Research Center, Bryan ADRC, Joseph and Kathleen Bryan Alzheimer's Disease Research Center 2026-08-29 11:22:20 0
Florida Brain Bank
 
Resource Report
Resource Website
Florida Brain Bank (RRID:SCR_004936) biomaterial supply resource, brain bank, material resource, tissue bank THIS RESOURCE IS NO LONGER IN SERVICE. Documented on January 11, 2023. A service and research oriented network of statewide regional brain bank sites. The intent of the brain bank program is to study brains of persons clinically diagnosed with dementia and provide tissue for research after their deaths. Mt. Sinai Medical Center contracts annually with the State of Florida to operate the primary brain bank. Coordinators at regional brain bank sites in Orlando, Tampa and Pensacola assist in recruiting participants and act as liaisons between the brain bank and participant families. Alzheimer's disease respite care program providers, memory disorder clinics, and model day care programs also recruit brain bank participants. The Florida Brain Bank supports collaborative research programs related to Alzheimer's disease and other degenerative disorders of the brain. post-mortem, tissue, brain, alzheimer's disease, dementia, clinical, mild cognitive impairment, florida, brain bank, degenerative brain disorder is listed by: One Mind Biospecimen Bank Listing
has parent organization: State of Florida Alzheimer's Disease Initiative
has parent organization: Wien Center For Alzheimer's Disease and Memory Disorders
Alzheimer's disease, Dementia, Mild Cognitive Impairment State of Florida Department of Elder Affairs THIS RESOURCE IS NO LONGER IN SERVICE nlx_143950 http://elderaffairs.state.fl.us/english/BrainBank/index.php SCR_004936 State of Florida Brain Bank, Florida Alzheimer's Disease Brain Bank 2026-08-29 11:22:13 0
Alzheimer's and Dementia Resource Center
 
Resource Report
Resource Website
100+ mentions
Alzheimer's and Dementia Resource Center (RRID:SCR_004924) ADRC biomaterial supply resource, brain bank, material resource, tissue bank The Alzheimer's and Dementia Resource Center (ADRC) facilitates tissue donations for the Brain Bank Research Program in order to help find better treatments, more diagnostic tools and a cure for Alzheimer's disease and dementia. The Brain Bank Program is administered by Mount Sinai Medical Center in Miami Beach and under contract with the Florida Department of Elder Affairs. ADRC also provides caregivers with the educational resources, spiritual comfort and emotional support. The ADRC facilitates training for professional caregivers that meets requirements for the Florida Department of Elder Affairs. alzheimer's disease, dementia, brain, tissue, brain bank, caregiver, educational resource, patient support is listed by: One Mind Biospecimen Bank Listing Alzheimer's disease, Dementia Public, Registration and pre-registration required to access the brain bank nlx_143948 SCR_004924 alzheimer's disease, tissue, brain, patient support, educational resource, caregiver, dementia, brain bank 2026-08-29 11:22:13 421
Northwestern CNADC Tissue Bank / Neuropathology Core
 
Resource Report
Resource Website
Northwestern CNADC Tissue Bank / Neuropathology Core (RRID:SCR_013178) biomaterial supply resource, brain bank, material resource, tissue bank Tissue bank for collecting, cataloging and storing postmortem brain tissue samples from subjects with and without neurological disorders. Specimens are available for research on cognitive impairment, Alzheimer's, dementia and other disorders along with clinical data such as demographic information, health and family history and neuropsychological test scores. The bank provides services to distribute postmortem brain tissue and other samples to investigators for use in research that will provide qualitative and quantitative diagnostic information to physicians, families, and researchers. brain tissue, brain, tissue, plasma, blood, dna, cerebral spinal fluid, paraformaldehyde-fixed, frozen, paraffin block, unfixed, late adult human, autopsy, post-mortem, clinical dementia rating scale, mini mental state examination, neuropathology, clinical data, alzheimer's disease, dementia, normal control, non-demented control, dementia with lewy body, frontotemporal lobar degeneration, pick disease, corticobasal degeneration, tauopathy, progressive supranuclear palsy, tangle-predominant senile dementia, amyotrophic lateral sclerosis, motor neuron disease, vascular dementia, mild cognitive impairment, research, brain bank, tissue is listed by: One Mind Biospecimen Bank Listing
has parent organization: Northwestern University Cognitive Neurology and Alzheimers Disease Center
Alzheimer's disease, Dementia, Dementia with Lewy body, Frontotemporal lobar degeneration, Pick disease, Corticobasal degeneration, Tauopathy, Progressive Supranuclear Palsy, Tangle-predominant senile dementia, Amyotrophic Lateral Sclerosis, Motor Neuron Disease, Vascular dementia, Mild cognitive impairment, Aging NIA P30 AG13854 Available to the research community nlx_144054 http://www.brain.northwestern.edu/mdad/neuropathology.html SCR_013178 Northwestern University Cognitive Neurology and Alzheimer's Disease Center Tissue/Neuropathology Core, Northwestern University CNADC Tissue/Neuropathology Core, Northwestern's Cognitive Neurology and Alzheimers Disease Center Tissue/Neuropathology Core, Northwestern Tissue/Neuropathology Core, Northwestern Neuropathology Core of CNADC, Northwestern Cognitive Neurology and Alzheimer's Disease Center Tissue/Neuropathology Core, Northwestern Cognitive Neurology Alzheimer's Disease Center Tissue/Neuropathology Core, Northwestern CNADC Tissue / Neuropathology Core, Northwestern University CNADC Tissue / Neuropathology Core 2026-08-29 11:24:37 0
SIU Center for Alzheimer's Disease and Related Disorders
 
Resource Report
Resource Website
SIU Center for Alzheimer's Disease and Related Disorders (RRID:SCR_013199) SIU CADRD data or information resource, disease-related portal, patient-support portal, portal, service resource, topical portal, training service resource Resource center that provides assistance for patients and families affected by Alzheimer's disease and related conditions. The Center provides patient care through the Memory and Aging Clinic as well as through research, education and service to the community. Additionally the Center provides training in dementia care, maintains centralized data collection, and sponsors programs of research that qualify for federal financial participation. alzheimer's disease, dementia, clinical trial, clinical, late adult human, research, patient care, education, training service has parent organization: Southern Illinois University School of Medicine; Illinois; USA
is parent organization of: SIU CADRD Dementia Brain Autopsy Program
Alzheimer's disease, Dementia, Aging Public nlx_144045 SCR_013199 SIU School of Medicine Center for Alzheimer's Disease and Related Disorders 2026-08-29 11:24:29 0
Comprehensive Neuroscience Center
 
Resource Report
Resource Website
Comprehensive Neuroscience Center (RRID:SCR_008705) CNC analysis service resource, behavioral analysis service, data or information resource, organization portal, portal, production service resource, service resource THIS RESOURCE IS NO LONGER IN SERVICE, documented on July 08, 2014. A multi-disciplinary institute providing specialized diagnostic evaluations, innovative treatments, education and research. It provides a collaborative, team-centered approach to provide innovative diagnostics to assist in developing cutting-edge brain based interventions and treatment strategies to best serve their patient's individual needs. Comprehensive Neuroscience Center is dedicated to working with children and adults who demonstrate neurodevelopmental disorders such as Autism Spectrum Disorders, Attention Deficits Hyperactivity Disorder, Learning Disabilities and Language-based deficits, as well as other neurological-based disorders including Traumatic brain injury, Disorders of Consciousness, Disorders of Aging, Alzheimer's and Dementia. neuroscience, treatment, diagnostics, diagnosis, neurodevelopmental, disorder, autism, hyperactivty, disability, neurological, traumatic brain injury, consciousness, alzheimer's, dementia, adult human, child, intervention Neurodevelopmental disorder, Autism Spectrum Disorder, Attention deficit-hyperactivity disorder, Learning Disability, Language-based deficit, Neurological-based disorder, Traumatic brain injury, Disorder of Consciousness, Disorder of Aging, Alzheimer's disease, Dementia THIS RESOURCE IS NO LONGER IN SERVICE nif-0000-37854 SCR_008705 2026-08-29 11:23:33 0
Johns Hopkins Alzheimer's Disease Research Center
 
Resource Report
Resource Website
Johns Hopkins Alzheimer's Disease Research Center (RRID:SCR_008757) biomaterial supply resource, brain bank, material resource, tissue bank A Alzheimer's Disease Research Center (ADRC) whose goal is to conduct basic and clinical research aimed at understanding Alzheimer's disease. The Center enrolls a variety of individuals for clinical trials, evaluation and follow-up, including: normal control subjects, individuals with mild memory problems, and patients diagnosed with Alzheimer's Disease or related dementias. Researchers can request data and specimens obtained from ADRC subjects. These include blood or DNA, brain specimens, and cross-sectional or longitudinal clinical and cognitive data, all from ADRC subjects. alzheimer's disease, mild memory problem, dementia, clinical data, cognitive data, blood, dna, brain, tissue, human, clinical trial, memory is listed by: One Mind Biospecimen Bank Listing
has parent organization: Johns Hopkins University School of Medicine; Baltimore, Maryland; USA
Alzheimer's disease, Normal control, Mild memory problem, Dementia, Aging NIA Public, Researchers can request data and specimens obtained from ADRC subjects nlx_144105 SCR_008757 Johns Hopkins ADRC, Johns Hopkins Alzheimer's Disease Research Center 2026-08-29 11:23:12 0
Mayo Clinic Jacksonville: Neuropathology and Microscopy
 
Resource Report
Resource Website
1+ mentions
Mayo Clinic Jacksonville: Neuropathology and Microscopy (RRID:SCR_008753) biomaterial supply resource, brain bank, material resource, tissue bank A brain bank and laboratory focused on memory and motor disorders. Brains are sent to the laboratory for diagnosis and research for the State of Florida Alzheimer Disease Initiative and for the Society for Progressive Supranuclear Palsy. As part of this brain banking function, fixed and frozen brain samples are obtained at autopsy and sent to the laboratory for diagnostic evaluation and for various types of research studies. The major types of analyses performed on the brain samples include neuro-histology, immunohistochemistry, confocal microscopy, electron microscopy and image analysis, as well as immunoassays. The latter are based upon Western blotting and enzyme linked immunoassays. The laboratory has a specific interest in the interface between normal aging and Alzheimer's disease, as well as in non-Alzheimer's degenerative disorders such as Lewy body dementia, corticobasal degeneration, progressive supranuclear palsy and frontotemporal dementia. The primary focus of research on aging is neuropathologic characterization of brains of individuals who had been prospectively and longitudinally evaluated during life. These studies aim to determine differences in a range of biologic parameters in brains of people with normal cognitive, mild cognitive impairment and dementia. Their focus on Parkinson's disease is to identify preclinical Parkinson's disease in order to develop means for early diagnosis. tissue, brain, fixed, frozen, alzheimer's disease, normal aging, memory disorder, motor disorder, parkinson's disease, progressive supranuclear palsy, lewy body disease, corticobasal degeneration, frontotemporal dementia, dementia, mild cognitive impairment, mouse, neurofibrillary degeneration, postmortem, normal control, autopsy is listed by: One Mind Biospecimen Bank Listing
has parent organization: Mayo Clinic Florida; Florida; USA
has parent organization: Mayo Alzheimer's Disease Research Center
has parent organization: Florida Alzheimer's Disease Research Center
Alzheimer's disease, Aging, Memory disorder, Motor disorder, Parkinson's disease, Progressive Supranuclear Palsy, Lewy Body Disease, Corticobasal Degeneration, Frontotemporal dementia, Dementia, Mild Cognitive Impairment NIA P50-AG16574;
NIA P50-AG25711;
NINDS P50-40256
nlx_143952 SCR_008753 Mayo Clinic Jacksonville: Neuropathology Microscopy, Mayo Clinic Florida: Neuropathology and Microscopy, Neuropathology and Microscopy - Dennis W. Dickson, Mayo Clinic Florida: Neuropathology and Microscopy - Dennis W. Dickson 2026-08-29 11:23:33 1
Michigan Alzheimer's Disease Center Brain Bank
 
Resource Report
Resource Website
Michigan Alzheimer's Disease Center Brain Bank (RRID:SCR_008774) MADC biomaterial supply resource, brain bank, material resource, tissue bank An organization that provides scientists with human tissue from Alzheimer's patients and patients with related brain disorders. Brain tissue is collected from research studies at the University of Michigan, as well as other research centers, and are donated by the families of the patients or the participants themselves. Tissues that are present in the Brain Bank are pre-characterized by pathologists and can be provided to researchers upon request. alzheimer's disease, dementia, late adult human, brain, tissue, brain tissue, autopsy, brain donation, clinical data is listed by: One Mind Biospecimen Bank Listing
has parent organization: Michigan Alzheimer's Disease Center
Alzheimer's disease, Dementia, Aging Available to research staff upon request nlx_144107 http://www.med.umich.edu/alzheimers/research/brain_bank.htm SCR_008774 MADC Brain Bank 2026-08-29 11:23:12 0
MUSC Center on Aging Campbell Neuropathology Laboratory
 
Resource Report
Resource Website
1+ mentions
MUSC Center on Aging Campbell Neuropathology Laboratory (RRID:SCR_008826) MUSC Center on Aging Neuropathology Lab biomaterial supply resource, brain bank, material resource, tissue bank A brain bank and biospecimen repository that provides research materials to clinicians, scientists and pathologists in South Carolina. The bank provides both control and diseased biospecimens and brain tissue needed for research in Alzheimer's disease, Parkinson's disease and other related neurological disorders. The Campbell Laboratory coordinates the brain tissue donation program, provides post-mortem confirmation of a patient having neurological disorders, and leads research trials. Any South Carolina resident can choose to sign up as a tissue donor and have their brain tissue donated post-mortem to be used for neurological disorder research. The tissue bank will process and analyze these tissue samples and send the results to the deceased person's family. brain tissue, brain, tissue, alzheimer's disease, parkinson's disease, neurological disorder, stroke, dementia, normal control, late adult human, clinical trial is listed by: One Mind Biospecimen Bank Listing
has parent organization: Medical University of South Carolina Center on Aging
Alzheimer's disease, Parkinson's disease, Neurological disorder, Stroke, Aging, Dementia Account required nlx_144505 http://academicdepartments.musc.edu/brainbank/ SCR_008826 MUSC Center on Aging Carroll A. Campbell Jr. Neuropathology Laboratory, Carroll A. Campbell Jr. Neuropathology Laboratory (Brain Bank), Medical University of South Carolina Center on Aging Carroll A. Campbell Jr. Neuropathology Laboratory, Carroll A. Campbell Jr. Neuropathology Laboratory at MUSC, Carroll A. Campbell Jr. Neuropathology Laboratory 2026-08-29 11:23:34 2
NIMH Brain Tissue Collection
 
Resource Report
Resource Website
1+ mentions
NIMH Brain Tissue Collection (RRID:SCR_008726) NIMH Brain Bank biomaterial supply resource, brain bank, material resource, tissue bank A collection of brain tissue from individuals suffering from schizophrenia, bipolar disorder, depression, anxiety disorders, and substance abuse, as well as healthy individuals. The research mission of the NIMH Brain Bank is to better understand the underlying biological mechanisms and pathways that contribute to schizophrenia and other neuropsychiatric disorders, as well as to study normal human brain development. schizophrenia, bipolar disorder, depressive disorder, anxiety disorder, substance abuse, healthy, neurological disorder, mental disease, suicide, tourette's syndrome, dementia, brain development, brain, brain tissue, tissue, post-mortem, normal control, ClinicalTrials.gov Identifier: NCT00001260 is listed by: One Mind Biospecimen Bank Listing
has parent organization: NIMH Intramural Research Program Clinical Brain Disorders Branch
Schizophrenia, Bipolar Disorder, Depressiive Disorder, Anxiety Disorder, Drug Abuse, Healthy, Neurological disorder, Mental disease, Suicide, Tourette's Syndrome, Dementia, Normal control, Aging NIMH Samples available to investigators approved by an NIMH Oversight Committee, Molecular and genetic data available to the scientific community nlx_143684 http://cbdb.nimh.nih.gov/neuropath.htm SCR_008726 2026-08-29 11:27:37 1
UT Southwestern ADC Brain Tissue Donation Program
 
Resource Report
Resource Website
UT Southwestern ADC Brain Tissue Donation Program (RRID:SCR_008837) UTSW Brain Tissue Donation Program, UTSW ADC Brain Tissue Donation Program biomaterial supply resource, brain bank, material resource, tissue bank Brain tissue donation program at the UT Southwestern Memory Clinic that aims to utilize these contributions for research on Alzheimer's. Diagnosis of Alzheimer's disease or other dementias are made through autopsy, the results of which are available to family members. brain tissue, tissue, brain, alzheimer's disease, late adult human, mild cognitive impairment, dementia, frontotemporal dementia, autopsy, research is listed by: One Mind Biospecimen Bank Listing
has parent organization: University of Texas Southwestern Medical Center - Alzheimer's Disease Center
Alzheimer's disease, Mild Cognitive Impairment, Aging, Dementia, Frontotemporal Dementia Private nlx_144639 SCR_008837 2026-08-29 11:27:37 0
Video Journal of Dementias
 
Resource Report
Resource Website
Video Journal of Dementias (RRID:SCR_018382) VJDementia data or information resource, video resource Open access online video resource about dementia for researchers dedicated to bringing latest news and education in short form video format. Published by Oxford based Magdalen Medical Publishing. Video, dementia, Magdalene Medical Publishing Alzheimer, dementia, Parkinson Restricted SCR_018382 2026-08-29 11:30:47 0
University of Kentucky's Alzheimer's Disease Center
 
Resource Report
Resource Website
1+ mentions
University of Kentucky's Alzheimer's Disease Center (RRID:SCR_008766) UK-ADC, UK ADC biomaterial supply resource, material resource, tissue bank An organization which includes a tissue bank, a database, study design consultation, clinical resources, and a community registry database. The UK-ADC shares data with the NIA national database (NACC), as well as with independent, qualified investigators both within and outside the UK-ADC. This resource's associated tissue bank is comprised of anonymized brain tissue, blood, and cerebrospinal fluid samples from patients in the clinic, as well as frozen post-mortem brain tissue samples. This organization also shares research resources with the National Alzheimer's Coordinating Center (NACC), NACC collaborative initiatives, the Alzheimer's Disease Neuroimaging Initiative (ADNI), other Alzheimer Disease Centers (ADCs), and any qualified investigators from either the University of Kentucky or the general scientific community. post-mortem, brain, brain tissue, cerebral spinal fluid, serum, plasma, buffy coat, blood, alzheimer's disease, dementing disorder, mild cognitive impairment, dementia, frozen, formalin fixed, paraffin embedded slide, clinical, neuropathology, neuropathologic disease, neuropathologic diagnosis, clinical, registry is listed by: One Mind Biospecimen Bank Listing
has parent organization: University of Kentucky Alzheimer's Disease Center
Alzheimer's disease, Dementing disorder, Dementia, Neuropathologic diagnosis NIA P30 AG028383 Public nlx_144056 http://www.mc.uky.edu/coa/clinicalcore/alzheimercenter.html#neuropathology, http://www.mc.uky.edu/coa/clinicalcore/Neuropathology%20Core.html SCR_008766 University of Kentucky Alzheimer's Disease Center Biospecimen Data or Clinical Request, UK-Alzheimer's Disease Center Biospecimen Data or Clinical Request 2026-08-29 11:30:20 1
Emory ADRC Tissue and Biospecimen Banking Facility
 
Resource Report
Resource Website
Emory ADRC Tissue and Biospecimen Banking Facility (RRID:SCR_000551) biomaterial supply resource, material resource, tissue bank The Alzheimer's Disease Research Center at Emery University maintains an active brain bank to facilitate the acquisition, storage, handling and distribution of well-characterized autopsy brain tissue and other materials to investigators. It contains frozen tissue and brain specimens, formalin fixed tissue, paraformaldehyde fixed tissue, and cryopreserved tissue. The ADRC also has access to tissues and samples related to other neurodegenerative diseases. It contains plasma samples, serum samples, lymphoblast cell lines, and cerebrospinal fluid. brain bank, biomaterial supply resource, brain tissue, plasma, cerebral spinal fluid, serum, lymphoblast cell line, buffy coat isolate, buffy coat, frozen, paraffin block, paraformaldehyde-fixed, cryopreserved, alzheimer's disease, parkinson's disease, neurodegenerative disease, tauopathy, huntington's disease, normal control is listed by: One Mind Biospecimen Bank Listing
is affiliated with: Emory Alzheimer's Disease Research Center
is related to: Emory Neurology Database
has parent organization: Emory University School of Medicine; Atlanta; Georgia; USA
Alzheimer's disease, Parkinson's disease, Neurodegenerative disease, Tauopathy, Huntington's disease, Creutzfeldt-Jakob Syndrome, Dementia, Movement disorder, Sleep disorder, Stroke, Neuromuscular disease, Nervous system disease, Amyotrophic Lateral Sclerosis, Restless Leg Syndrome NINDS P30 NS055077 Public, Investigators must notify the ADRC of data use, Investigators must send a final copy of any accepted manuscript that used data or recruited research participations from the ADRC, Grant acknowledgement required, Institution acknowledgement required nlx_144036 SCR_000551 Emory Tissue and Biospecimen Banking Facilities, Emory Tissue & Biospecimen Banking Facility, Emory ADRC Tissue & Biospecimen Banking Facility 2026-08-29 11:29:14 0
Standardized Mini-Mental State Examination
 
Resource Report
Resource Website
Standardized Mini-Mental State Examination (RRID:SCR_003703) SMMSE assessment test provider, material resource Assessment test imposing strict guidelines for administration and scoring to improve the reliability of the Mini-Mental State Examination (MMSE), a screening test for the purpose of evaluating cognitive impairment in older adults. cognitive function, late adult human, standardized is related to: Mini-Mental State Examination Dementia, Depressive Disorder, Alzheimer''''s disease, Vascular dementia, Dementia with Lewy bodies PMID:11723596 nlx_157856 SCR_003703 Standardised Mini-Mental Examination, Standardized Mini-Mental State Examination (SMMSE) 2026-08-29 11:30:55 0
Informant Questionnaire on Cognitive Decline in the Elderly
 
Resource Report
Resource Website
1+ mentions
Informant Questionnaire on Cognitive Decline in the Elderly (RRID:SCR_003680) IQCODE assessment test provider, material resource Assessment questionnaire used as a screening test for dementia that is filled out by a relative or other supporter who knows the patient for a minimum of 10 years to determine whether that person has declined in cognitive functioning. It lists 26 everyday situations where a person has to use their memory or intelligence. The questions on the test compare the patient''s state of mind to 10 years ago using the scale of: Much Improved A Bit Improved Not Much Change A Bit Change A Bit Worse and Much Worse. If the person is found to have significant cognitive decline, then this needs to be followed up with a medical examination to determine whether dementia is present. Scoring: * 0-3 No Cognitive Impairment * >3 Cognitive Impairment late adult human, cognitive functioning, questionnaire, cognitive has parent organization: Australian National University; Acton; Australia
has parent organization: Alzheimers Association
Cognitive Impairment, Dementia Free, Author appreciates being kept informed of research projects which make use of it nlx_157833 SCR_003680 Informant Questionnaire on Cognitive Decline in the Elderly (IQCODE) 2026-08-29 11:30:55 1
KI Biobank - HARMONY
 
Resource Report
Resource Website
1+ mentions
KI Biobank - HARMONY (RRID:SCR_008884) HARMONY biomaterial supply resource, material resource A twin study characterizing the importance of genetic factors for dementia and using discordant twin pairs to study other putative risk factors which control for genetic propensity to develop the disease. Molecular genetic studies have identified a number of mutations and other markers associated with early age of onset Alzheimer''''s disease. However, most cases of late age of onset dementia are considered sporadic, that is, without a clear genetic basis. Twin studies provide a unique opportunity to characterize the importance of genetic factors for dementia. Discordant twin pairs additionally provide the opportunity to study other putative risk factors which controlling for genetic propensity to develop the disease. In the first wave of the Study of Dementia in Swedish Twins, all SATSA twins born before 1935 have been screened for dementia symptoms. Over 190 suspects have been identified. This pilot study has been expanded to the entire registry in the study known as HARMONY. All twins aged 65 and older were invited to participate in a computer assisted telephone screening interview. A total of 13,519 individuals completed the interview (response rate = 75.9%). Dementia screening was based on the TELE, which includes the 10-item MSQ, other cognitive items (counting backwards, recalling three words, and similarities), and questions about health and daily functioning; or on Blessed scores obtained from a proxy interview. Among those screened, 1565 were positive for suspicion of dementia and were referred for complete clinical evaluation by a physician and a nurse. Once the preliminary in-person evaluation suggested that the suspected case was demented, the twin partner was also invited for an identical clinical work-up. Response rate for clinical evaluations is 71.4%. Approximately half of those visited for evaluation have been diagnosed as demented according to DSM-IV criteria, of which two-thirds have Alzheimer''''s disease. An extensive assessment of probable risk exposure is also included. Longitudinal follow-up is yet another feature of the study. Association studies with candidate genes are also being performed. Types of samples * DNA Number of sample donors * 1154 (sample collection completed) interview, late adult human, clinical evaluation, association study, candidate gene, gene, risk factor, twin, longitudinal is listed by: One Mind Biospecimen Bank Listing
is related to: Swedish Twin Registry
is related to: KI Biobank - SATSA
has parent organization: Karolisnka Biobank
Dementia, Alzheimer''''s disease, Discordant twin, Aging NIH nlx_151298 http://ki.se/en/meb/dementia-in-swedish-twins-harmony SCR_008884 Dementia in Swedish Twins (HARMONY) 2026-08-29 11:31:04 2

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