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| Resource Name | Proper Citation | Abbreviations | Resource Type |
Description |
Keywords | Resource Relationships | |||||||||||||
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ISCA Consortium Resource Report Resource Website 50+ mentions |
ISCA Consortium (RRID:SCR_006168) | ISCA Consortium, ISCA | community building portal, consortium, data or information resource, database, organization portal, portal | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on June 22, 2022. A rapidly growing group of clinical cytogenetics and molecular genetics laboratories committed to improving quality of patient care related to clinical genetic testing using new molecular cytogenetic technologies including array comparative genomic hybridization (aCGH) and quantitative SNP analysis by microarrays or bead chip technology. They improve clinical care by providing a large publicly available database and forum where clinicians and researchers can share knowledge to expedite the understanding of copy number variation (CNV) in an abnormal population. The ISCA database contains whole genome array data from a subset of the ISCA Consortium clinical diagnostic laboratories. Array analysis was carried out on individuals with phenotypes including intellectual disability, autism, and developmental delay. Efforts of the Consortium include: # Clinical Utility: The ISCA Consortium has made recommendations regarding the appropriate clinical indications for cytogenetic array testing (Miller et al. AJHG 2010, PMID: 20466091). Currently, discussions are focused on pediatric applications for children with unexplained developmental delay, intellectual disability, autism and other developmental disabilities. A separate committee has been developed to address appropriate cancer genetic applications (http://www.urmc.rochester.edu/ccmc/). # Evidence-based standards for cytogenomic array design: The Consortium will develop recommendations for standards for the design, resolution and content of cytogenomic arrays using an evidence-based process and an international panel of experts in clinical genetics, clinical laboratory genetics (cytogenetics and molecular genetics), genomics and bioinformatics. This design is intended to be platform and vendor-neutral (common denominator is genome sequence coordinates), and is a dynamic process with input from the broader genetics community and evidence-based review by the expert panel (which will evolve into a Standing Committee with international representation). # Public Database for clinical and research community: It is essential that publicly available databases be created and maintained for cytogenetic array data generated in clinical testing laboratories. The ISCA data will be held in dbGaP and dbVar at NCBI/NIH and curated by a committee of clinical genetics laboratory experts. The very high quality of copy number data (i.e., deletions and duplications) coming from clinical laboratories combined with expert curation will produce an invaluable resource to the clinical and research communities. # Standards for interpretation of cytogenetic array results: Using the ISCA Database, along with other genomic and genetics databases, the Consortium will develop recommendations for the interpretation and reporting of pathogenic vs. benign copy number changes as well as imbalances of unknown clinical significance. | clinical, cytogenetics, molecular genetics, genetic testing, molecular cytogenetic technology, array comparative genomic hybridization, quantitative snp analysis, microarray, bead chip, genome, array, phenotype, copy number, deletion, duplication, copy number variation, FASEB list |
is related to: Database of Genomic Variants Archive (DGVa) is related to: NCBI database of Genotypes and Phenotypes (dbGap) is related to: UCSC Genome Browser |
Intellectual disability, Developmental delay, Etc., Autism | This resource is no longer in service | nlx_151670 | SCR_006168 | ISCA Consortium and Public Database, International Standards for Cytogenomic Arrays (ISCA) Consortium, International Standards For Cytogenomic Arrays Consortium | 2026-09-19 12:55:08 | 78 | ||||||
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ClinVar Resource Report Resource Website 5000+ mentions |
ClinVar (RRID:SCR_006169) | ClinVar | data or information resource, data repository, database, service resource, storage service resource | Archive of aggregated information about sequence variation and its relationship to human health. Provides reports of relationships among human variations and phenotypes along with supporting evidence. Submissions from clinical testing labs, research labs, locus-specific databases, expert panels and professional societies are welcome. Collects reports of variants found in patient samples, assertions made regarding their clinical significance, information about submitter, and other supporting data. Alleles described in submissions are mapped to reference sequences, and reported according to HGVS standard. | sequence variation, variation, phenotype, genetics, genetic variation, clinical, allele, aggregator, geneotype, gene, disease, clinical assertion, bio.tools |
is used by: NIF Data Federation is used by: MARRVEL is listed by: OMICtools is listed by: bio.tools is listed by: Debian is related to: AutoGVP has parent organization: NCBI |
Free, Freely available | nlx_151671, r3d100013331, biotools:clinvar, OMICS_00262 | https://bio.tools/clinvar, https://doi.org/10.17616/R31NJMS3 | SCR_006169 | 2026-09-19 12:55:09 | 7407 | |||||||
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Center for Computational Biology at UCLA Resource Report Resource Website |
Center for Computational Biology at UCLA (RRID:SCR_000334) | CCB, UCLA CCB, USC CCB | data or information resource, organization portal, portal | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on August 31, 2022. Center focused on the development of computational biological atlases of different populations, subjects, modalities, and spatio-temporal scales with 3 types of resources: (1) Stand-alone computational software tools (image and volume processing, analysis, visualization, graphical workflow environments). (2) Infrastructure Resources (Databases, computational Grid, services). (3) Web-services (web-accessible resources for processing, validation and exploration of multimodal/multichannel data including clinical data, imaging data, genetics data and phenotypic data). The CCB develops novel mathematical, computational, and engineering approaches to map biological form and function in health and disease. CCB computational tools integrate neuroimaging, genetic, clinical, and other relevant data to enable the detailed exploration of distinct spatial and temporal biological characteristics. Generalizable mathematical approaches are developed and deployed using Grid computing to create practical biological atlases that describe spatiotemporal change in biological systems. The efforts of CCB make possible discovery-oriented science and the accumulation of new biological knowledge. The Center has been divided into cores organized as follows: - Core 1 is focused on mathematical and computational research. Core 2 is involved in the development of tools to be used by Core 3. Core 3 is composed of the driving biological projects; Mapping Genomic Function, Mapping Biological Structure, and Mapping Brain Phenotype. - Cores 4 - 7 provide the infrastructure for joint structure within the Center as well as the development of new approaches and procedures to augment the research and development of Cores 1-3. These cores are: (4)Infrastructure and Resources, (5) Education and Training, (6) Dissemination, and (7) Administration and Management. The main focus of the CCB is on the brain, and specifically on neuroimaging. This area has a long tradition of sophisticated mathematical and computational techniques. Nevertheless, new developments in related areas of mathematics and computational science have emerged in recent years, some from related application areas such as Computer Graphics, Computer Vision, and Image Processing, as well as from Computational Mathematics and the Computational Sciences. We are confident that many of these ideas can be applied beneficially to neuroimaging. | functional, genetic, biological system, brain, clinical, computational, computational mathematic, disease, health, image processing, physiological, population, structural, neuroimaging, computational neuroscience, imaging genomics, magnetic resonance, pet, spect |
is listed by: NeuroImaging Tools and Resources Collaboratory (NITRC) is related to: National Centers for Biomedical Computing has parent organization: Laboratory of Neuro Imaging |
NCRR U54 RR021813 | PMID:22081221 | THIS RESOURCE IS NO LONGER IN SERVICE | nif-0000-10492 | http://ccb.loni.ucla.edu/ | http://www.nitrc.org/projects/ccb, http://cms.loni.ucla.edu/CCB/ | SCR_000334 | CCB at UCLA, Center for Computational Biology | 2026-09-19 12:55:48 | 0 | |||
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Coalition For Accelerating Standards and Therapies Resource Report Resource Website 1+ mentions |
Coalition For Accelerating Standards and Therapies (RRID:SCR_000206) | CFAST | data or information resource, portal | Consortium establishing data standards, tools and methods for conducting research in therapeutic areas important to public health including Alzheimer's disease, Parkinson's disease, multiple sclerosis, polycystic kidney disease, and tuberculosis.CDISC and C-Path have agreed to discontinue using separate CFAST brand, but they both remain committed to this mission and continue to partner to develop and publish therapeutic area data standards. | CDISC, C-Path, drug, clinical trial, data element, data sharing, clinical, virology |
is listed by: Consortia-pedia has parent organization: Critical Path Institute; Arizona; USA |
FDA 1U01FD003865-01 | nlx_157879 | SCR_000206 | Coalition For Accelerating Standards and Therapies (CFAST) | 2026-09-19 12:55:48 | 1 | |||||||
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BioEden Tooth Cell Bank Resource Report Resource Website 1+ mentions |
BioEden Tooth Cell Bank (RRID:SCR_000507) | BioEDEN | biomaterial supply resource, cell repository, material resource | International private stem cell storage bank to collect, assess and cryogenically store living tooth cells from deciduous baby teeth. Tooth cell banking is a safe, natural and completely noninvasive method of collecting and preserving valuable stem cells which could hold the key to your child's health. Simply enroll, send us your child's tooth when it falls out, and they'll do the rest. Stem cell treatment to repair or replace damaged tissues or organs is the cornerstone of future medical science. Children's milk teeth, (baby teeth) have been identified as a rich source of these stem cells and have the potential to treat some of the worst illnesses and diseases facing people today. Stem cells from teeth (mesenchymal stem cells) are different from those found in cord blood (hematopoietic stem cells). Cord blood cells can be used to treat blood disorders such as leukemia, but stem cells from teeth are different. Stem cells from teeth can be used to grow a range of tissues including bone, nerve, fat, muscle and cartilage and may one day be used to grow entire organs. It is widely believed that stem cells will be used to treat a wide variety of diseases and injuries within the next decade. Their UK facility is regulated by the Human Tissue Authority (HTA), and they hold a full license. They are also registered with the Food and Drug Administration (FDA) in the US. BioEDEN, Ltd is ISO 9001:2008 accredited by the British Assessment Bureau. When you enroll for the BioEDEN service, you will be offered the opportunity to consent to donate any excess cells. BioEDEN will provide these cells to leading academic and clinical research centers to help further the progression of this technology to useful clinical applications. BioEDEN will only provide cells to researchers that have full ethical approval for their research and will be guided by our Advisory team as to the most appropriate research to support. The cells will be donated in accordance with strict regulatory guidelines and anonymity of the donor will be strictly assured at all times. Donation of cells is an entirely opt in service. If you choose not to give consent to donate, BioEDEN will simply store the cells for your child. | clinical, cryopreserved, frozen, stem cell, cell, tooth, mesenchymal stem cell, transplantation, research | is listed by: One Mind Biospecimen Bank Listing | Loss of tooth | Public | nlx_25195 | SCR_000507 | 2026-09-19 12:55:48 | 2 | |||||||
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EpiTarget Resource Report Resource Website 1+ mentions |
EpiTarget (RRID:SCR_003771) | EPITARGET | data or information resource, portal | A multidisciplinary project focused on the process leading to epilepsy, epileptogenesis, in adults. Their main hypothesis is that there are combinations of various causes, acting in parallel and/or in succession, that lead to epileptogenesis and development of seizures. Their central premise and vision is that a combinatorial approach is necessary to identify appropriate biomarkers and develop effective antiepileptogenic therapeutics. The project will focus on: * identifying novel biomarkers and their combinations for epileptogenesis after potentially epileptogenic brain insults in clinically relevant animal models, such as traumatic brain injury (TBI) and status epilepticus (SE); * exploring multiple basic mechanisms of epileptogenesis and their mutual interactions; * and translating these findings towards the clinic by validating biomarkers in human samples accessible to the consortium. | common data element, preclinical, target, biomarker, antiepileptogenesis, adult human, animal model, clinical | has parent organization: Lund University; Lund; Sweden | Epilepsy | European Union FP7 602102 | nlx_158041 | SCR_003771 | EPITARGET - Targets and biomarkers for antiepileptogenesis | 2026-09-19 12:55:52 | 7 | ||||||
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Bellvitge Biomedical Research Institute Resource Report Resource Website 10+ mentions |
Bellvitge Biomedical Research Institute (RRID:SCR_003917) | IDIBELL | data or information resource, organization portal, portal | A research center focused on cellular medicine, where the basic research focuses and works on relevant clinical matters and fosters economic development. The center manages the research of the Bellvitge University Hospital, the Institut Catal�� d''Oncologia (Catalan Institute of Oncology) and the University of Barcelona. It is one of the first five Spanish research centers accredited as health research institute by the Instituto de Salud Carlos III (Health Institute Carlos III). | cellular medicine, cell, medicine, clinical |
is related to: PRECISESADS has parent organization: University of Barcelona; Barcelona; Spain |
nlx_158270 | SCR_003917 | Institut d''Investigaci�� Biom��dica de Bellvitge (IDIBELL), Institut d''Investigacio Biomedica de Bellvitge (IDIBELL), Fundaci�� Institut d''Investigaci�� Biom��dica de Bellvitge, Institut d''Investigaci�� Biom��dica de Bellvitge, Institut d''Investigacio Biomedica de Bellvitge | 2026-09-19 12:55:52 | 28 | ||||||||
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European Multicenter Study about Spinal Cord Injury Resource Report Resource Website 10+ mentions |
European Multicenter Study about Spinal Cord Injury (RRID:SCR_003720) | EMSCI | data or information resource, database, organization portal, portal | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on January 6, 2023. A clinical spinal cord injury network that provides a database of clinical assessment data from spinal cord injured patients. The EMSCI assessment scheme currently consists of the so called core sets: neurological (ISNCSCI), functional (10MWT, 6MWT, TUG, WISCI2) measurements and independence measures (SCIM3). Additional assessments are: neurophysiology (MEP, SSEP, NCV), pain, hand function and an urodynamics. | clinical assessment, spinal cord, injury, network, neurological, functional, independence, neurophysiology, pain, hand function, urodynamics, therapeutic intervention, clinical | Spinal cord injury, Paraplegic | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_157896 | SCR_003720 | 2026-09-19 12:55:52 | 37 | ||||||||
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McConnell Brain Imaging Center Resource Report Resource Website 100+ mentions |
McConnell Brain Imaging Center (RRID:SCR_008364) | BIC | data or information resource, organization portal, portal | Center dedicated to understanding and treatment of neurological diseases by creating and using imaging methods to study human nervous system. Dedicated to research imaging of human brain. Brain structure is imaged using anatomical Magnetic Resonance Imaging (aMRI) while brain physiology is imaged using Positron Emission Tomography (PET), Magnetic Resonance Spectroscopy (MRS), functional MRI (fMRI) and magnetoencephalography (MEG). BIC maintains linkages with clinical, clinical research and basic research communities within Montreal Neurological Institute (MNI), McGill University and has collaborations across Quebec, Canada, USA and internationally. | emission, engineering, environment, fmri, functional mri, 3-dimensional, amri, anatomical, biomedical, brain, chemistry, clinical, computational, computer science, disease, disorder, human, imaging, magnetic, magnetoencephalography, medical, mri, mrs, nervous system, neurological, neurology, neuroscience, neurosurgery, pet, physics, physiology, positron, psychiatric, psychology, research, resonance, scanner, software, spectroscopy, spectrum, technology, tomography, treatment, neuroimaging, meg, atlas, database, data visualization software, data analysis software, data processing software |
is related to: MINC/Atlases has parent organization: McGill University; Montreal; Canada is parent organization of: MINC Example files is parent organization of: MINC is parent organization of: MNI N3 is parent organization of: McConnell Brain Imaging Center MNI Macaque Atlas is parent organization of: McConnell Brain Imaging Center MNI Rhesus Macaque Atlas is parent organization of: McConnell Brain Imaging Center MNI Cynomolgus Macaque Atlas is parent organization of: NIHPD Objective 1 atlases (4.5 - 18.5y) is parent organization of: NIHPD Objective 2 atlases (birth - 4.5 years) is parent organization of: ICBM 152 Nonlinear atlases version 2009 |
McConnell Family Foundation | nif-0000-25551 | https://www.mcgill.ca/bic/resources/brain-atlases/ovine-brain-atlas, https://www.mcgill.ca/bic/resources/brain-atlases/human, https://www.mcgill.ca/bic/resources/brain-atlases/non-human-primate | SCR_008364 | McConnell Brain Imaging Center, McConnell Brain Imaging Centre, BIC | 2026-09-19 12:55:57 | 133 | ||||||
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Study of Womens Health Across the Nation (SWAN) Repository Resource Report Resource Website 1+ mentions |
Study of Womens Health Across the Nation (SWAN) Repository (RRID:SCR_008810) | SWAN Repository | biomaterial supply resource, cell repository, material resource | The SWAN Repository is the biologic specimen bank of the Study of Women''s Health Across the Nation (SWAN). SWAN is a National Institutes of Health funded, multi-site, longitudinal study of the natural history of the midlife including the menopausal transition. The overall goal of SWAN is to describe the chronology of the biological and psychosocial characteristics that occur during midlife and the menopausal transition. In addition, SWAN is describing the effect of the transition and its associated characteristics on subsequent health and risk factors for age related chronic diseases. SWAN was designed to collect and analyze information on demographics, health and social characteristics, reproductive history, pre-existing illness, physical activity, and health practices of mid-life women in multi-ethnic, community-based samples; elucidate factors that differentiate symptomatic from asymptomatic women during the menopausal transition; identify and utilize appropriate markers of the aging of the ovarian-hypothalamo-pituitary axis and relate these markers to alterations in menstrual cycle characteristics as women approach and traverse the menopause; and explain factors that differentiate women most susceptible to long-term pathophysiological consequences of ovarian hormone deficiency from those who are protected. The biological specimen bank can also be linked by identification number (not by participant name) to data collected in the Core SWAN protocol. The specimen bank can also be linked with data from the Daily Hormone Study as well as menstrual calendars. Types of data include: epidemiological data, psychosocial data, physical measures, as well as data from assays (endocrine and cardiovascular information). SWAN has seven clinical study sites located in six states, two in California, and one each in Chicago, Boston, Detroit area, northern New Jersey and Pittsburgh. The SWAN cohort was recruited in 1996/7 and consists of 3302 African American, Caucasian, Chinese American, Hispanic and Japanese American women. Cohort members complete an annual clinic visit. The Core Repository includes over 1.8 million samples from the first 11 years of specimen collection. This includes samples from annual visits and samples from the Daily Hormone Sub-study (DHS). During an Annual visit, participants provide materials for up to 24-28 aliquots to be incorporated into the Repository. During a DHS visit, a participant provides 6 serum samples and between ~30-50 urine samples depending upon the length of her menstrual cycle. DHS participants (887) provide urine samples collected throughout one menstrual cycle each year. A typical DHS collection consists of a blood draw plus collection of 10 ml of urine daily throughout the month-long menstrual cycle, up to 50 days. DHS Repository samples consist of 6 serum samples and 30 5 ml urine samples. Specimen collection occurs from the time of menstrual bleed to the subsequent menstrual bleed or up to 50 days, whichever come first. The current DHS collection consists of more than 200,000 specimens stored in 5 ml vials. The SWAN DNA Repository currently contains extracted diluted DNA from 1538 SWAN participants. B-lymphocytes were transformed with Epstein Barr virus, and the resulting transformed b-cells aliquoted. Information about using these transformed cells for genomic or proteomic studies is available. DNA has been extracted from one aliquot (per woman) of the immortalized cells using the Puregene system. There was an average DNA yield of 217.0 mg/mL and a A260/A280 average ratio of 1.86. This DNA, in turn, has been aliquoted into 20ng/1 ml units for release by the DNA Repository. Samples are free of personal identifiers and collected under consents that allow a broad range of activities related to women''s health. All of these samples are available to researchers who wish to study the midlife and menopausal transition. Scientists who use these specimens can also request data collected during a participant''s annual visit including medical and health history, psychosocial measures, biological measures and anthropometry. | woman, menopause, clinical, african american, caucasian, chinese american, hispanic, japanese american, clinical data, serum, urine, dna, blood, whole blood, sputum pellet, immortalized cell, cell, frozen, liquid nitrogen, menopause, midlife woman |
is listed by: One Mind Biospecimen Bank Listing has parent organization: University of Michigan; Ann Arbor; USA |
Menopause, Midlife woman, Aging | NIA | Public: All of these samples are available to researchers who wish to study the midlife and menopausal transition. | nlx_144411 | SCR_008810 | Study of Womens Health Across the Nation Repository, Study of Women''s Health Across the Nation Repository, Study of Women''s Health Across the Nation (SWAN) Repository | 2026-09-19 12:55:58 | 1 | |||||
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NIH Clinical Collection Resource Report Resource Website 10+ mentions |
NIH Clinical Collection (RRID:SCR_007349) | NCC | material resource, reagent supplier | A plated array of approximately 450 small molecules that have a history of use in human clinical trials. The collection was assembled by the National Institutes of Health (NIH) through the Molecular Libraries Roadmap Initiative as part of its mission to enable the use of compound screens in biomedical research. Similar collections of FDA approved drugs have proven to be rich sources of undiscovered bioactivity and therapeutic potential. The clinically tested compounds in the NCC are highly drug-like with known safety profiles. These compounds can provide excellent starting points for medicinal chemistry optimization and, for high-affinity targets, may even be appropriate for direct human use in new disease areas. | clinical, collection, drug, compound, chemistry, medicinal chemistry, target, affinity, human, disease, disorder, small molecule | is related to: Molecular Libraries Program | NIH | nif-0000-00254 | SCR_007349 | 2026-09-19 12:55:57 | 14 | ||||||||
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g.BSanalyze Resource Report Resource Website 1+ mentions |
g.BSanalyze (RRID:SCR_009625) | g.BSanalyze | data processing software, software application, software resource | An interactive environment for multimodal biosignal data processing and analysis in the fields of clinical research and life sciences. It is the most comprehensive package to analyze non-invasive and invasive brain-, heart- and muscle-functions and dysfunctions. It includes many functions such as support vector machines, event-related ECG, support for P300 and SSVEP/SSSEP BCIs, zero class detection for BCIs, compressed spectral array, minimum energy, and more! g.BSanalyze consists of a base version for data import, visualization, transformation and pre-processing and has several dedicated toolboxes. The package comes with many sample biosignal data-sets, including P300, SSVEP, motor imagery, CSP BCIs, Tilt-Table, EPs, multi-unit activity, CFM, and ERD/ERS. | ascii, eeg, meg, matlab, microsoft, windows, clinical | is listed by: NeuroImaging Tools and Resources Collaboratory (NITRC) | Other/Commercial license License | nlx_155850 | http://www.nitrc.org/projects/gbsanalyze | SCR_009625 | 2026-09-19 12:56:00 | 2 | |||||||
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NIH Roadmap Resource Report Resource Website 1+ mentions |
NIH Roadmap (RRID:SCR_011465) | RMOD, RM | data or information resource, government granting agency, portal, project portal | Collection of far reaching initiatives designed to transform research capabilities and improve translation of research into practice. Program consists of three major themes: new pathways to discovery, research teams of future, and reengineering clinical research enterprise. | Initiative, transform, research, discovery, future, clinical, grant |
is used by: Deep Blue Epigenomic Data Server has parent organization: National Institutes of Health |
PMID:23584747 | nlx_inv_1005081 | https://www.niehs.nih.gov/funding/grants/announcements/roadmap/index.cfm, https://science.sciencemag.org/content/345/6194/274 | http://nihroadmap.nih.gov/grants/ | SCR_011465 | NIH roadmap initiative office of the director | 2026-09-19 12:56:01 | 1 | |||||
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HiLive Resource Report Resource Website |
HiLive (RRID:SCR_016134) | data analysis software, data processing software, sequence analysis software, software application, software resource | Software tool for performing read mapping that maps Illumina HiSeq sequencer read alignments when they are produced. Used in Next Generation Sequencing in time critical, clinical applications. | perform, read, mapping, sequence, alignment, analysis, Illumina, time, critical, clinical, application |
is listed by: Debian is listed by: OMICtools |
the German Federal Ministry of Health IIA5-2512-FSB-725 | PMID:27794555 | Free, Available for download | OMICS_13393 | https://sources.debian.org/src/hilive/ | https://sourceforge.net/projects/hilive/ | SCR_016134 | 2026-09-19 12:53:18 | 0 | |||||
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Research Data Management Platform Resource Report Resource Website 1+ mentions |
Research Data Management Platform (RRID:SCR_016268) | RDMP | data management software, data or information resource, data repository, service resource, software application, software resource, software toolkit, storage service resource | Software toolkit which automates the loading, storage, linkage and provision of data sets. It also cleans, transforms and documents provenance meta-data and domain knowledge to make data sets “research ready”. | metadata, reproducibility, anonymization, security, audit, clinical, dataset, translational, research, data, management, catalogue, health, informatics, linkage | has parent organization: University of Dundee; Scotland; United Kingdom | EU Horizon 2020 633983; Medical Research Council (MRC) MR/M501633/1; Wellcome Trust WT086113 |
Free, Available for download | https://hic.dundee.ac.uk/Installers/RDMP/Stable/ | SCR_016268 | 2026-09-19 12:53:20 | 2 | |||||||
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National Sleep Research Resource (NSRR) Resource Report Resource Website 50+ mentions |
National Sleep Research Resource (NSRR) (RRID:SCR_016576) | NSRR | data or information resource, organization portal, portal | System for sharing sleep data. Organization portal that aggregates, harmonizes, and organizes sleep and clinical data from individuals studied as part of cohort studies or clinical trials and provides suite of tools to facilitate data exploration and data visualization. National Heart, Lung, and Blood Institute resource designed to provide big data resources to sleep research community. | sleep, clinical, data, cohort, study, trial, dataset, visualization, exploration |
is recommended by: National Library of Medicine lists: Apnea, Bariatric surgery, and CPAP study lists: Sleep Heart Health Study lists: Honolulu-Asia Aging Study of Sleep Apnea lists: Cleveland Family Study lists: Cleveland Children's Sleep and Health Study lists: Best Apnea Interventions for Research (BestAIR) sleep study |
sleep apnea | NHLBI | PMID:29860441 | Free, Freely available, Registration required for membership | https://sleepdata.org/share, https://sleepdata.org/datasets | SCR_016576 | National Sleep Research Resource | 2026-09-19 12:53:25 | 88 | ||||
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OECI - Tubafrost: The European Human Frozen Tissue Bank Resource Report Resource Website 1+ mentions |
OECI - Tubafrost: The European Human Frozen Tissue Bank (RRID:SCR_004280) | Tubafrost | biomaterial supply resource, material resource, tissue bank | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on January 9, 2023. In this web site you will find the central European database of OECI-TuBaFrost collecting the information of biobanks or in the project support environment on human material; i.e., frozen tumor tissue specimens, pathology blocks, blood samples in different forms, cell lines, Tissue Micro Arrays, etc. Our goal is by centralizing the tumor tissues information to facilitate the search of doctors / researchers for tumor materials, which they need for their cancer research there with facilitating cancer research. OECI members only can participate in the OECI-TuBaFrost exchange platform, or those introduced by an OECI member. We are a group of pathology and research departments as well as bio-bankers in clinical based biobanking based in comprehensive cancer centers or hospitals with a competence in comprehensive cancer care across Europe. Each participating institute is involved in cancer research resulting in innovative procedures, new drugs, improved diagnosis and new insights in disease development. The overall result is better care and treatment for cancer patients. To maximize the scientific value of the human tissue samples, information about the clinical status of the patient in combination with the quality and type of samples is very important. A TuBaFrost electronic database will securely store all this information. Within the closed project supporting environments, the data collected will include: * Diagnosis - identification of the type of cancer * Type of tissue collected - the origin, i.e. breast, skin, colorectal * Quality of tissue collected - collection and storage details The tissue is stored in the hospital where the donor was diagnosed/treated. It stays there until it is used or sent to another hospital or research center within the TuBaFrost group. The electronic database will track samples throughout the network. The tissue is not sold. The exchange of tissue to other hospitals is regulated by a contract, which uses the national regulations of the country supplying the tissue. Tissue samples within the TuBaFrost collection will only be used for research, which has been approved by ethics committees. This ensures that the tissue is only used for the best quality research and only for the specific reasons given to the ethics committee. | tumor tissue, blood, cell line, tissue, frozen, block, tissue micro array, tumor, cancer, clinical, clinical data |
is listed by: One Mind Biospecimen Bank Listing has parent organization: OECI - Organisation for European Cancer Institutes |
Tumor, Cancer | European Union | PMID:18564601 | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_36384 | SCR_004280 | OECI-TuBaFrost database, TuBaFrost biobank, Tubafrost Central Database, OECI TuBaFrost, Tubafrost - The European Human Frozen Tissue Bank, OECI-TuBaFrost | 2026-09-19 12:56:43 | 2 | ||||
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Cancer Research Network of the FRSQ Resource Report Resource Website |
Cancer Research Network of the FRSQ (RRID:SCR_004225) | RRCancer | biomaterial supply resource, material resource, tissue bank | An infrastructure to allow Quebec researchers to have at their disposal tumor banks and the services that support large scale research in genomics and proteomics. The database and the tissue bank of the research network was created to allow rapid access to biological samples and their clinical data. It is spread out over many hospital institutions (in Montreal, Quebec and Sherbrooke). The members of the RRCancer-BTD supply normal, benign and malignant samples from routine surgeries and blood tests. Blood and tissue samples are collected by the provincial biobanks on a regular basis and are coded, classified and stored. The samples can be supplied to a researcher either fresh or frozen or blocks of paraffin or on slices. The sharing of information and biological material is managed according to ethical rules and contributes to increasing the value of research in Quebec. The network has mobilized a significant number of researchers in the area of cancer that unite their efforts to pursue high caliber multidisciplinary research. They are a group of researchers from many different Qu��bec Universities all working in the branch of cancer research. They are located in four hospital centers in Quebec, namely the University of Montreal Hospital Centre (CHUM), the University of Quebec Hospital Centre (CHUQ), the University of Sherbrooke Hospital Centre (CHUS) and the McGill University Hospital Centre (CUSM), as well as in the affiliated research and university centers (Sacr��-Coeur, Maisonneuve-Rosemont and the Montreal Jewish Hospital). The collaborative efforts created and maintained in this network have allowed transfer of knowledge and the sharing of cutting edge technologies. RRCancer favors multidisciplinary cancer research in both fundamental and clinical scopes. The network is based on the desire researchers to work together to prevent cancer and improve therapeutic strategies, all the while continuing the very important task of raining new specialists and graduate students. | genomics, proteomics, benign, malignant, clinical |
is listed by: One Mind Biospecimen Bank Listing is related to: University of Montreal Hospital Centre; Quebec; Canada is related to: Canadian Tumour Repository Network is related to: University of Quebec Hospital Centre; Quebec; Canada is related to: University of Sherbrooke Hospital Centre; Quebec; Canada is related to: Sacred Heart Hospital of Montreal; Quebec; Canada is related to: Maisonneuve-Rosemont Hospital; Quebec; Canada is related to: Jewish General Hospital; Quebec; Canada is related to: McGill University Health Centre; Quebec; Canada has parent organization: FRQS |
Cancer, Normal | FRQS | PMID:16980224 | nlx_143641 | SCR_004225 | R��seau de recherche en cancer, R��seau de recherche sur le cancer du FRSQ, RRCancer-BTD, R��seau de recherche sur le cancer, FRSQ Cancer Research Network | 2026-09-19 12:56:42 | 0 | |||||
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Angioma Alliance DNA/Tissue Bank and Patient Registry Resource Report Resource Website |
Angioma Alliance DNA/Tissue Bank and Patient Registry (RRID:SCR_004390) | Angioma Alliance DNA/Tissue Bank and Patient Registry | biomaterial supply resource, material resource, tissue bank | Angioma Alliance has established a DNA/Tissue Bank and matching clinical database for cerebral cavernous malformations (CCM, cavernous angioma, cavernoma). Our goal is to create the world''s largest collection of CCM genetic samples with matching clinical data to be used as a resource to drive research. We are recruiting individuals with a history of cerebral cavernous malformations to participate in the study. Qualified participants donate a blood sample and complete a comprehensive questionnaire or interview. Blood donation kits will be sent in the mail for participants to take to their doctor, clinic or blood draw center to have their blood drawn. The kit is then mailed to a private lab where the sample is processed. If a surgery is scheduled, the Angioma Alliance DNA/Tissue Bank will work with the participant, the surgeon, and the hospital to coordinate tissue donation. If surgery scheduling allows, dry ice will be shipped to the hospital facility along with a tissue collection kit for use and return to the private lab. The Angioma Alliance DNA/Tissue Bank will attempt to acquire Institutional Review Board approvals at facilities where this is required. The Angioma Alliance BioBank will follow up with participants on a yearly basis to update their clinical information. If the participant has not already had documented genetic testing, we will test their DNA sample for possible CCM1, CCM2, or CCM3 mutation or CCM2 exon 2-10 deletion. If additional causative genes are identified for the illness, we will also test for mutations on these. Participants will not be informed of the results of testing, but if a mutation or deletion is found, they will be informed that results can be released to a diagnostic laboratory in order to obtain follow-up confirmatory clinical diagnostic testing. This could mean a substantial cost savings to the patient whose insurance does not cover genetic testing or who is uninsured. All researchers requesting the use of DNA and/or Tissue samples from Angioma Alliance must complete an application form and material transfer agreement. | cerebral cavernous malformation, cavernous angioma, cavernoma, clinical, blood, dna, fresh, frozen, ccm lesion tissue, ccm1, ccm2, frozen, paraffin section, slides, ccm3, paraffin-embedded, public |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Angioma Alliance |
Angioma, Cerebral cavernous malformation, Cavernous angioma, Cavernoma | Angioma Alliance | Public | nlx_143719 | SCR_004390 | Angioma Alliance BioBank, Cerebral Cavernous Malformations DNA and Tissue Bank, Cerebral Cavernous Malformations (CCM) DNA & Tissue Bank, CCM DNA & Tissue Bank, CCM DNA and Tissue Bank, Cerebral Cavernous Malformations (CCM) DNA and Tissue Bank | 2026-09-19 12:56:43 | 0 | |||||
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MD Anderson Gynecologic Cancer Tissue Bank Resource Report Resource Website |
MD Anderson Gynecologic Cancer Tissue Bank (RRID:SCR_005004) | MD Anderson Gynecologic Cancer Tissue Bank | biomaterial supply resource, material resource, tissue bank | The purpose of the Multidisciplinary Gynecologic Cancer Translational Research Tissue Bank is to provide investigators with primary human tissue for research projects relating to gynecologic cancer. Priority for samples is given to the MD Anderson scientific community. This tissue bank handles the consent, collection, processing, storage and distribution of primary gynecologic tumor samples as well as ascites, blood and urine of gynecologic cancer patients. | clinical, tissue, tumor, ascites, blood, urine, peritoneal cavity fluid, gynecologic cancer, gynecologic tumor, cancer, tumor |
is listed by: One Mind Biospecimen Bank Listing has parent organization: University of Texas MD Anderson Cancer Center |
Gynecologic cancer, Gynecologic tumor | Private/Public: Priority for samples is given to the MD Anderson scientific community. | nlx_96124 | http://www.mdanderson.org/education-and-research/resources-for-professionals/scientific-resources/core-facilities-and-services/multidisciplinary-gynecologic-cancer-translational-research-tissue-bank/index.html | SCR_005004 | MD Anderson Cancer Center Gynecologic Cancer Translational Research Tissue Bank, Multidisciplinary Gynecologic Cancer Translational Research Tissue Bank, MD Anderson Cancer Center Gynecologic Cancer Tissue Bank | 2026-09-19 12:56:48 | 0 |
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