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| Resource Name | Proper Citation | Abbreviations | Resource Type |
Description |
Keywords | Resource Relationships | |||||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
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Clinical Dementia Rating Resource Report Resource Website 100+ mentions |
Clinical Dementia Rating (RRID:SCR_003678) | CDR | assessment test provider, material resource | A numeric scale used to quantify the severity of symptoms of dementia (i.e. its stage). Using a structured-interview protocol, a qualified health professional assesses a patient's cognitive and functional performance in six areas: memory, orientation, judgment and problem solving, community affairs, home and hobbies, and personal care. Scores in each of these are combined to obtain a composite score ranging from 0 through 3. (Adapted from Wikipedia) | memory, orientation, judgment, problem solving, community, hobby, personal care, late adult human | has parent organization: Washington University School of Medicine in St. Louis; Missouri; USA | Dementia, Alzheimer's disease | Free | nlx_157831 | SCR_003678 | Global CDR Assignment Based On Box Scores, Global Clinical Dementia Rating (CDR) Based on CDR Box Scores | 2026-08-29 11:30:43 | 237 | ||||||
|
National Alzheimer's Coordinating Center Resource Report Resource Website 50+ mentions |
National Alzheimer's Coordinating Center (RRID:SCR_007327) | NACC | biomaterial supply resource, material resource | A clinical research, neuropathological research and collaborative research database that uses data collected from 29 NIA-funded Alzheimer's Disease Centers (ADCs). The database consists of several datasets, and searches may be done on the entire database or on individual datasets. Any researcher, whether affiliated with an ADC or not, may request a data file for analysis or aggregate data tables. Requested aggregate data tables are produced and returned as soon as the queue allows (usually within 1-3 days depending on the complexity). | alzheimer's disease, brain, clinical, database, disease, human, neuropathological, neuropathology, specimen, tissue, FASEB list |
is listed by: One Mind Biospecimen Bank Listing is related to: Alzheimers Disease Genetics Consortium is related to: Alzheimers Disease Genetics Consortium is related to: National Cell Repository for Alzheimer's Disease has parent organization: University of Washington; Seattle; USA |
Alzheimer's disease, Dementing disorder, Dementia | NIH Blueprint for Neuroscience Research ; NIA U01 AG016976 |
Data are freely available to all researchers | nif-0000-00203 | SCR_007327 | National Alzheimer's Coordinating Center | 2026-08-29 11:30:49 | 54 | |||||
|
Health and Retirement Study Resource Report Resource Website 100+ mentions |
Health and Retirement Study (RRID:SCR_008930) | HRS | biomaterial supply resource, material resource | A data set of a longitudinal panel study of health, retirement, and aging that surveys a representative sample of more than 26,000 Americans over the age of 50 every two years. The HRS explores the changes in labor force participation and the health transitions that individuals undergo toward the end of their work lives and in the years that follow. The study captures a dynamic picture of an aging America''s physical and mental health, insurance coverage, financial status, family support systems, labor market status, and retirement planning. The sample in 2006 numbered over 22,000 persons in 13,100 households, with oversamples of Hispanics, Blacks and Florida residents. Beginning in 2006, half the sample received enhanced face-to-face follow-ups that included the collection of physical measures and biomarkers HRS provides a research data base that can simultaneously support continuous cross-sectional descriptions of the US population over the age of fifty-five, longitudinal studies of a given cohort over a substantial period of time (up to 18 years by 2010 for the original HRS cohort, following them from age 51-61 to age 69-79) and research on cross-cohort trends. By 2010 the HRS will be able to support cross-cohort comparisons of trajectories of health, labor supply, or wealth accumulation for persons who entered their 50s in 1992, 1998 and 2004. The HRS also has provided the sampling frame for targeted sub-studies. The Aging, Demographics, and Memory Study (ADAMS) supplement on dementia involved a field assessment of a sample of about 930 HRS panel members aged 75+ to clinically assess their dementia status and dementia severity. Special topics including consumption and time use, prescription drug use and the impact of Medicare Part D, parents'' human capital investments in children, and diabetes management by self-reported diabetics, have appeared on mail surveys that have used the HRS as a sampling frame. The HRS also can accommodate a number of experimental topics using Internet interviewing. The HRS is also characterized by links to a rich array of administrative data, including: Employer Pension Plans; National Death Index; Social Security Administration earnings and (projected) benefits data; W-2 self-employment data; and Medicare and Medicaid files. The HRS has actively collaborated with other longitudinal studies of aging in other countries (e.g., ELSA, SHARE, MHAS), providing both scientific and technical assistance. Data Availability: All publicly available data may be downloaded after registration. Early Release data files are typically available within three months of the end of each data collection, with the Final Release following at 24 months after the close of data collection activities. Files linked with administrative data are released only as restricted data through an application process, as outlined on the HRS website. * Dates of Study: 1992-present * Study Features: Longitudinal, Minority Oversamples, Anthropometric Measures, Biospecimens * Sample Size: 22,000+ Link * ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/06854 | health, retirement, income, work, asset, pension plan, health insurance, disability, physical health, cognition, health care expenditure, interview, mental health, work status, retirement planning, adult, middle adult human, late adult human, questionnaire, retirement plan, family structure, demographics, housing, employment status, job history, attitude, preference, expectation, family relations, health care cost, medicaid, personal finance, social support, wealth, hispanic, african-american, minority, longitudinal, memory, consumption, time use, prescription drug use, medicare part d, diabetes management, diabetes |
is listed by: One Mind Biospecimen Bank Listing is listed by: Inter-university Consortium for Political and Social Research (ICPSR) is related to: Nihon University Japanese Longitudinal Study of Aging has parent organization: University of Michigan; Ann Arbor; USA |
Aging, Dementia | U.S. Social Security Administration ; NIA U01AG009740 |
Public: Must register and conditions of Use apply. | nlx_151830 | SCR_008930 | University of Michigan Health and Retirement Study, University of Michigan Health and Retirement Study (HRS) | 2026-08-29 11:31:04 | 122 | |||||
|
National Cell Repository for Alzheimer's Disease Resource Report Resource Website 10+ mentions |
National Cell Repository for Alzheimer's Disease (RRID:SCR_007313) | NCRAD | biomaterial supply resource, material resource, tissue bank | Cell repository for Alzheimer's disease that collects and maintains biological specimens and associated data. Its data is derived from large numbers of genetically informative, phenotypically well-characterized families with multiple individuals affected with Alzheimer's disease, as well as individuals for case-control studies. | gene, alzheimers disease, dementia, dna, late onset, memory loss, phenotypic data, research study, clinical data, plasma, serum, rna, brain tissue, family history, blood |
is listed by: One Mind Biospecimen Bank Listing is related to: DIAN - Dominantly Inherited Alzheimer Network is related to: Alzheimers Disease Genetics Consortium is related to: National Alzheimer's Coordinating Center has parent organization: Indiana University; Indiana; USA |
Alzheimer's disease, Late-onset Alzheimer's disease, Dementia, Memory loss | NIA ; NIH Blueprint for Neuroscience Research |
Public, Application required for genetic research | nif-0000-00178 | SCR_007313 | 2026-08-29 11:29:50 | 36 | ||||||
|
Open Access Series of Imaging Studies Resource Report Resource Website 100+ mentions |
Open Access Series of Imaging Studies (RRID:SCR_007385) | OASIS | data or information resource, database | Project aimed at making neuroimaging data sets of brain freely available to scientific community. By compiling and freely distributing neuroimaging data sets, future discoveries in basic and clinical neuroscience are facilitated. | early, stage, alzheimer, disease, mri, fmri, image, brain, dicom, magnetic, resonance, collection, data, FASEB list |
is used by: NIF Data Federation is listed by: NeuroImaging Tools and Resources Collaboratory (NITRC) is related to: Automatic Registration Toolbox is related to: 2012 MICCAI Multi-Atlas Labeling Challenge Data has parent organization: Howard Hughes Medical Institute has parent organization: Washington University School of Medicine in St. Louis; Missouri; USA has parent organization: Biomedical Informatics Research Network is parent organization of: Cover Pages |
Alzheimer's disease, Dementia, Normal, Nondemented, Aging | NCRR U24 RR021382; NIA P01 AG03991; NIA P50 AG05681; NIA R01 AG021910; NIMH P50 MH071616; NIMH R01 MH56584 |
Free, Acknowledgement required | r3d100012182, nif-0000-00387 | http://www.nitrc.org/projects/oasis, https://doi.org/10.17616/R3RS8K | SCR_007385 | The Open Access Series of Imaging Studies, Open Access Series of Imaging Studies, OASIS | 2026-08-29 11:29:59 | 357 | ||||
|
National Disease Research Interchange Resource Report Resource Website 100+ mentions Rating or validation data |
National Disease Research Interchange (RRID:SCR_000550) | NDRI | biomaterial supply resource, material resource, tissue bank | NDRI is a Not-For-Profit (501c3) Corporation dedicated to providing the highest quality human biomaterials for research. NDRI makes it easy for researchers to get the human tissues and organs they need, prepared, preserved and shipped precisely according to their specific scientific protocols, as quickly as possible, and in the largest available quantities. NDRI provides researchers with protocol specific human neurological tissues such as brain stem, spinal cord, and basal ganglia, among others. In addition to control specimens, NDRI recovers tissues from donors with a variety of diseases, including Down syndrome, Parkinsons disease, Alzheimers disease, schizophrenia, and dementia. Through the NDRI 24/7 referral and procurement system, research consented biospecimens can be provided from low post mortem interval donors preserved at 4ºC, frozen or snap frozen, fixed, paraffin embedded, or as unstained slides. | neurological, tissue, organ, cell, neurological tissue, brainstem, spinal cord, basal ganglia, cerebral cortex, hippocampus, frozen, snap frozen, fixed, paraffin embedded, unstained slide, disease, down syndrome, parkinson's disease, alzheimer's disease, schizophrenia, dementia, control, normal, catalog |
is listed by: One Mind Biospecimen Bank Listing is listed by: Multiple Sclerosis Discovery Forum is listed by: Biospecimens/Biorepositories: Rare Disease-HUB (RD-HUB) is parent organization of: Human Tissue and Organ for Research Resource (HTORR) is parent organization of: Human Biological Data Interchange is parent organization of: NDRI Dorsal Root Ganglia Program |
Down syndrome, Parkinson's disease, Alzheimer's disease, Schizophrenia, Dementia | NIH OD011158 | Public: NDRI is a nonprofit organization that procures and distributes normal and diseased human biomaterials to biomedical researchers in academia, government, and industry. | nlx_99804 | SCR_000550 | 2026-08-29 11:29:08 | 192 | ||||||
|
Queen Square Brain Bank Resource Report Resource Website |
Queen Square Brain Bank (RRID:SCR_004652) | QSBB | biomaterial supply resource, material resource, tissue bank | A brain bank which holds an archive of brains donated by individuals with neurodegenerative disease and others who serve as neurologically normal controls. It specializes in parkinsonian movement disorders, including Parkinson's disease and multiple system atrophy, and holds the national collection of brains donated by individuals with progressive supranuclear palsy (PSP). Recently the collection has been developed to include donated brains from prospectively studied people with familial dementias. The QSBB also banks brains donated by people with dystonia and Gilles de la Tourette syndrome. The Brain Bank aims to provide brain tissue for neuropathological studies and for scientific research both in the UK and worldwide. The large collection of tissue is backed up by clinical documentation and all material is fully evaluated by the neuropathologists at QSBB. Brain tissue is stored as formalin-fixed, wax embedded blocks and is frozen, either at -20 degrees C or at -80 degrees C (flash-frozen). Tissue can be provided as slide-mounted sections, or as small blocks for neurochemistry, proteomics and DNA and RNA analysis. Flash-frozen material has excellent histological preservation and is suitable for in situ hybridization and immunohistochemistry. Case-control studies are matched for post-mortem delay and agonal status and are supplied blind. | neurological disorder, parkinsons disease, clinical data, human brain, brain tissue, neurodegenerative disease, neurologically normal control, progressive supranuclear palsy, parkinsonian movement disorder, multiple system atrophy, dementia, dystonia, tourettes disorder |
is listed by: One Mind Biospecimen Bank Listing has parent organization: University College London; London; United Kingdom |
Neurodegenerative disease, Progressive Supranuclear Palsy, Parkinsonian movement disorder, Parkinson's disease, Multiple system atrophy, Dementia, Dystonia, Tourettes Disorder | UCL Institute of Neurology ; Reta Lila Weston Institute of Neurological Studies UCL ; PSP Association |
Available for neuropathological studies, Tissue requests from within the UK will be covered by the QSBB ethics approval, Requesters from outside the UK must provide evidence of approval from the Human Research Ethics Committee (or equivalent) of their parent institution | nlx_143854 | SCR_004652 | Queen Square Brain Bank for Neurological Disorders, UCL Brain Bank | 2026-08-29 11:29:29 | 0 | |||||
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Brain-Net Resource Report Resource Website 10+ mentions |
Brain-Net (RRID:SCR_005017) | biomaterial supply resource, material resource, tissue bank | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on June 28,2022. A network of several university centers in Germany that classifies neurological and psychiatric disorders neuropathologically and collects and provides brain tissue for research. The aim and task of the Brain-Net are: the collection of clinically and neuropathologically well-characterized brain tissue samples; the standardization of neuropathological diagnoses according to internationally accepted criteria; and providing a basis for future research projects using genetic, epidemiological, biometric and other issues to neurological and psychiatric disorders. | brain, tissue, autopsy, neurological disorder, mental disease, parkinson's disease, dementia, schizophrenia, suicidal tendency, depressive disorder, suicide, alzheimer's disease, amyotrophic lateral sclerosis, post mortem |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Ludwig-Maximilians-University; Munich; Germany |
Neurological disorder, Mental disease, Parkinson's disease, Dementia, Schizophrenia, Suicidal tendency, Depressive disorder, Alzheimer's disease, Amyotrophic lateral sclerosis | German Federal Ministry of Research and Education | THIS RESOURCE IS NO LONGER IN SERVICE. | nlx_144007 | SCR_005017 | BrainNet Germany, BrainNet | 2026-08-29 11:29:31 | 13 | ||||||
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Emory Neurology Database Resource Report Resource Website |
Emory Neurology Database (RRID:SCR_005277) | data or information resource, database | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on June 9, 2025. A database which retains extensive clinical information about study subjects recruited by the Alzheimer's Disease Research Center Clinical Core, as well as other individuals with neurological diseases. In addition to clinical information, the database has basic demographics, medical history (including risk factors such as smoking), and a detailed family history from all subjects. Some entries have neuropsychological measures. Users can access a Summary Database which contains the most commonly requested variables. A data dictionary describing the variables in the Summary Database is available. | alzheimer's disease, mild cognitive impairment, dementia, lewy body disease, parkinson's disease, movement disorder, amyotrophic lateral sclerosis, stroke, sleep disorder, clinical data, family history |
is affiliated with: Emory Alzheimer's Disease Research Center is related to: Emory ADRC Tissue and Biospecimen Banking Facility |
Alzheimer's disease, Mild Cognitive Impairment, Frontotemporal dementia, Dementia, Lewy body disease, Parkinson's disease, Amyotrophic lateral sclerosis, Stroke, Sleep disorder | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_144309 | SCR_005277 | 2026-08-29 11:29:40 | 0 | ||||||||
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Brown Brain Tissue Resource Center Resource Report Resource Website 1+ mentions |
Brown Brain Tissue Resource Center (RRID:SCR_005392) | BTRC | biomaterial supply resource, material resource, tissue bank | A tissue resource center which facilitates research into the relationship between Alzheimer's disease and other brain disorders such as strokes and mental illnesses. Most donations have been obtained from Alzheimer's patients. Normal controls are available, many of which are from subjects with close relatives with Alzheimer's. The Brown BTRC also supports a collection of brain tumor cases that were harvested from patients who underwent surgery and who were enrolled in a clinical trial for the development of new treatments for brain cancer. | alzheimer's disease, brain disorder, stroke, mental disease, memory disorder, lewy body disease, parkinson's disease, brain tumor, brain cancer, dementia, downs syndrome, brain tissue, tumor tissue, brain, clinical trial |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Brown Alpert Medical School; Rhode Island; USA |
Alzheimer's disease, Brain disorder, Stroke, Mental disease, Memory disorder, Lewy Body Disease, Parkinson's disease, Brain tumor, Brain cancer, Dementia, Downs syndrome | Available for affiliates of Brown Medical School, Available to the research community | nlx_144502 | SCR_005392 | Brown Alpert Medical School BTRC, Brown University Medical School BTRC, Brown Alpert Medical School Brain Tissue Resource Center | 2026-08-29 11:29:35 | 1 | ||||||
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Oregon Brain Bank Resource Report Resource Website |
Oregon Brain Bank (RRID:SCR_013085) | biomaterial supply resource, material resource | Brain bank that harvests, banks and disperses postmortem tissue for use in brain and medical research. It also provides neuropathologic diagnoses of organic dementia in a cohort of NIH sponsored research subjects. The bank includes tissue primarily from patients with Alzheimer's but also includes Huntington's, Parkinson's, and other disorders. | neurodegenerative research, postmortem, tissue, neurodegenerative, neurodegenerative disease, alzheimer's disease, huntington's disease, parkinson's disease, amyotrophic lateral sclerosis, multiple sclerosis, control, tissue, brain tissue, left hemisphere, right hemisphere, white matter, deep gray structure, brainstem, cerebellum, spinal cord, late adult human, flash frozen, formalin-fixed, stained, brain bank, research, medical |
is listed by: One Mind Biospecimen Bank Listing is related to: Layton Center Clinical Data Resources has parent organization: Oregon Health and Science University; Oregon; USA |
Alzheimer's disease, Huntington's disease, Parkinson's disease, Amyotrophic Lateral Sclerosis, Multiple Sclerosis, Dementia, Neurodegenerative disease, Aging | According to established protocols, For use in neurodegenerative research | nlx_35532 | SCR_013085 | Oregon Brain Bank: Human tissue repository for neurodegenerative research studies | 2026-08-29 11:31:12 | 0 | |||||||
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CERAD - Consortium to Establish a Registry for Alzheimer's Disease Resource Report Resource Website 1000+ mentions |
CERAD - Consortium to Establish a Registry for Alzheimer's Disease (RRID:SCR_003016) | CERAD | assessment test provider, material resource | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on January 4, 2023.Consortium that developed brief, standardized and reliable procedures for the evaluation and diagnosis of patients with Alzheimer's disease (AD) and other dementias of the elderly. These procedures included data forms, flipbooks, guidebooks, brochures, instruction manuals and demonstration tapes, which are now available for purchase. The CERAD assessment material can be used for research purposes as well as for patient care. CERAD has developed several basic standardized instruments, each consisting of brief forms designed to gather data on normal persons as well as on cognitively impaired or behaviorally disturbed individuals. Such data permit the identification of dementia based on clinical, neuropsychological, behavioral or neuropathological criteria. Staff at participating CERAD sites were trained and certified to administer the assessment instruments and to evaluate the subjects enrolled in the study. Cases and controls were evaluated at entry and annually thereafter including (when possible) autopsy examination of the brain to track the natural progression of AD and to obtain neuropathological confirmation of the clinical diagnosis. The CERAD database has become a major resource for research in Alzheimer's disease. It contains longitudinal data for periods as long as seven years on the natural progression of the disorder as well as information on clinical and neuropsychological changes and neuropathological manifestations., THIS RESOURCE IS NO LONGER IN SERVICE. Documented on September 16,2025. | clinical, behavior, late adult human, male, female, caucasian, african-american, autopsy, longitudinal, neuropsychology, neuropathology, FASEB list | has parent organization: Duke University; North Carolina; USA | Aging, Alzheimer's disease, Dementia, Cognitive impairment, Neurodegenerative disorder, Systemic illness, Cerebrovascular disease, Parkinson's disease, Depressive Disorder | NIA | THIS RESOURCE IS NO LONGER IN SERVICE | nif-0000-00523 | SCR_003016 | Consortium to Establish a Registry for Alzheimer's Disease | 2026-08-29 11:30:51 | 2337 | |||||
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Resources for Enhancing Alzheimers Caregiver Health Resource Report Resource Website |
Resources for Enhancing Alzheimers Caregiver Health (RRID:SCR_003638) | REACH | data or information resource, data set | Data set from six research sites that examined the feasibility and outcomes of the most promising home and community-based intervention approaches for enhancing family caregiving for Alzheimers Disease (AD) and related disorders (ADRD). A unique feature is the examination of AD burdens and interventions in three ethnic groups (Caucasians, Hispanics, and African Americans). Caregiver/care recipient dyads are entered into the study using standardized eligibility criteria. The dyads are randomized at each intervention site using site-specific procedures. Standardized assessment batteries are administered at baseline, 6, 12, and 18 months. The five general types of REACH interventions are: Individual Information and Support strategies that increase caregivers' understanding of dementia and their particular caregiving situation; Group Support and Family Systems efforts that provide caregivers with multiple forms of social support; Psychoeducational and Skill-Based Training approaches that teach caregivers coping and behavioral management strategies; Home-Based Environmental interventions that modify the home environment's effect on the care recipient and support the caregiver; and Enhanced Technology Systems such as home-centered computer/telephone networks that are designed to reduce caregiver distress and isolation. REACH II was funded in 2001 to test a single multi-component intervention among family caregivers of persons with ADRD, building upon the findings of REACH. Recruitment for REACH II was completed in January 2004 with 642 participants entering the study across 5 participating sites. | longitudinal, minority, caucasian, hispanic, african american, intervention, caregiver, caregiver burden, emotional state, family, health services utilization, health status, home health care, mental disorder, mental health, late adult human, outreach program, psychological wellbeing, questionnaire, anxiety, caregiver health, health behavior, sociodemographic, medication |
is listed by: Inter-university Consortium for Political and Social Research (ICPSR) has parent organization: University of Pittsburgh; Pennsylvania; USA |
Aging, Alzheimer's disease, Alzheimer's related disorder, Dementia, Stress | NIA ; NINR |
nlx_157789 | http://www.edc.pitt/REACH | SCR_003638 | Resources for Enhancing Alzheimer's Caregiver Health (REACH), Resources for Enhancing Alzheimer's Caregiver Health | 2026-08-29 11:31:50 | 0 | |||||
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Washington University School of Medicine Knight ADRC Request Center Resources Core Facility Resource Report Resource Website 1+ mentions |
Washington University School of Medicine Knight ADRC Request Center Resources Core Facility (RRID:SCR_025254) | access service resource, core facility, service resource | Provides on request resources including Data: clinical and cognitive measures as well as MRI and amyloid imaging scans; Tissue: frozen brain tissue, paraffin brain sections, antemortem CSF, DNA, fibroblast, dermal fibroblasts, plasma (fasting and non-fasting) and iPSC; Participants: eligible participants may be invited to enroll in research of other investigators after appropriate review. Researchers can use the request portal to review Center guidelines and policies; view available data and tissue; access data tables and codebooks; and submit request for resources. | ABRF, Alzheimer research, Data, OASIS, Biospecimen, tissue, imaging, |
is listed by: ABRF CoreMarketplace has parent organization: Washington University School of Medicine Knight Alzheimers Disease Research Center has parent organization: Washington University School of Medicine in St. Louis; Missouri; USA |
Alzheimer disease, dementia | NIA P01AG003991; NIA P01AG026276; NIA P30AG066444; NIA U19 AG0032438 |
ABRF_2734 | https://coremarketplace.org/?FacilityID=2734&citation=1 | SCR_025254 | ADRC Request Center Resources | 2026-08-29 11:33:49 | 4 | ||||||
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Van Andel Institute Brain Bank Resource Report Resource Website 1+ mentions |
Van Andel Institute Brain Bank (RRID:SCR_026035) | biobank, material storage repository, service resource, storage service resource | Brain bank that houses donated brains from people with neurodegenerative diseases and neurologically normal age-matched controls. VAI Brain Bank drives insight and discovery by providing scientists the samples needed to investigate the intricate underpinnings of Parkinson’s, dementias, and other neurodegenerative diseases. | Biobank, donated brains, neurodegenerative diseases, |
is related to: Van Andel Institute MiND Blood Biorepository has parent organization: Van Andel Institute |
neurodegenerative diseases, Parkinson, dementia | SCR_026035 | 2026-08-29 11:34:35 | 3 | ||||||||||
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Greek Association of Alzheimers Disease and Related Disorders Resource Report Resource Website |
Greek Association of Alzheimers Disease and Related Disorders (RRID:SCR_003938) | GAADRD | nonprofit organization | A non-profit organization whose aim is to offer advice concerning the care of Alzheimer''''s disease patients, information and services for the people affected and their families. Also, to offer mutual help to the family members of the patients in order to reduce the social, economic and emotional cost deriving from the long care of people suffering from dementia. Lastly, the association attempts to publicize the social needs of the population affected and to inform the public in order to be acquainted with the problem. The mission of the Greek Association of Alzheimer''''s Disease is * the early diagnosis of dementia by scientists * the promotion of research * education and training for all the stakeholders * the development of Care Units for patients with Alzheimer''''s Disease * the provision of useful information and advise (24 hour help-line) on dementia problems (caring, legal or financial issues) * the presentation of lectures by health professionals and informal carers, covering all aspects of Alzheimer Disease * and the development of professional seminars during the whole year. | late adult human |
is related to: Alzheimer Europe is related to: PharmaCog is related to: Alzheimers Disease International |
Alzheimer's disease, Dementia, Aging | nlx_158314, grid.428867.7 | https://ror.org/04xqgyf78 | SCR_003938 | Greek Association of Alzheimer Disease and Relative Disorders, Greek Association of Alzheimer Disease and Related Disorders, Alzheimer Hellas, Greek Association of Alzheimer's Disease and Related Disorders | 2026-08-29 11:21:48 | 0 | ||||||
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BrainNet Europe Resource Report Resource Website 10+ mentions |
BrainNet Europe (RRID:SCR_004461) | BNE | consortium, data or information resource, organization portal, portal | THIS RESOURCE IS NO LONGER IN SERVICE.Documented on July 7, 2022. Consortium of 19 brain banks across Europe with an aim to harmonize neuropathological diagnostic criteria and develop gold standards for quality, safety and ethics standards for brain banking. BrainNet Europe also contributes to research on rare diseases, such as: Pick''s disease or other rare forms of dementia, as well as to questions after the events in the aging brain. Anyone can be a donor - irrespective of disease of the central nervous system or not, because for research purposes, one does not only need tissue samples from ill donors, but also from healthy ones for comparison. | central nervous system, clinical, brain research, brain tissue, brain, tissue, late adult human, brain bank, gold standard, neuropathological diagnosis, tissue handling, safety, quality control, ethics, post mortem, data sharing, tissue sampling, autopsy, microdissection, diagnosis |
is listed by: One Mind Biospecimen Bank Listing is listed by: Consortia-pedia is related to: Medical University of Vienna Institute of Neurology is related to: Human Brain Tissue Bank has parent organization: Ludwig-Maximilians-University; Munich; Germany is parent organization of: BrainNet Europe Sampling Protocols |
Central nervous system disorder, Normal control, Aging, Neurological disease, Psychiatric disease, Pick''s disease, Dementia | European Union FP6 LSHM-CT-2004-503039 | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_45326 | SCR_004461 | BrainNet Europe Consortium | 2026-08-29 11:22:08 | 25 | |||||
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TalkBank Resource Report Resource Website 10+ mentions |
TalkBank (RRID:SCR_003242) | data or information resource, database, narrative resource, training material | Databases of transcript and media data collected from conversations with adults and older children to foster fundamental research in the study of human and animal communication. Conversations with children are available from CHILDES. All of the data is transcribed in CHAT and CA/CHAT formats. Databases of the following types are included in the collection: Aphasia patient speech, Child speech, Study of Phonological Development, Conversation Analysis, and Bilingualism and Second Language Acquisition. TalkBank will use these databases to advance the development of standards and tools for creating, sharing, searching, and commenting upon primary materials via networked computers. | aphasia, aphasiabank, bilingbank, cabank, phonbank, psychology, speech, communication, clinical, transcript, audio track, video, talk, voice, language, conversation, discourse, adult human, child, second language, audiology, media, animal communication, conversation analysis, discourse analysis, gesture, code switching, bilingualism, linguistic, phonological development, danish |
is listed by: re3data.org is related to: PhonBank has parent organization: Carnegie Mellon University; Pennsylvania; USA has parent organization: University of Pennsylvania; Philadelphia; USA works with: Child Language Data Exchange System (CHILDES) |
Aphasia, Dementia, Bilingualism | NICHD R01 HD051698; NICHD R01 HD23998; NIDCD R01 DC008524 |
Free, Freely available | nif-0000-00626, r3d100010551 | https://doi.org/10.17616/R3XW38 | SCR_003242 | 2026-08-29 11:21:28 | 36 | ||||||
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Alzheimer Europe Resource Report Resource Website 10+ mentions |
Alzheimer Europe (RRID:SCR_003802) | AE | nonprofit organization | A non-governmental organization aimed at raising awareness of all forms of dementia by creating a common European platform through co-ordination and co-operation between Alzheimer organizations throughout Europe. Alzheimer Europe is also a source of information on all aspects of dementia. |
is related to: Greek Association of Alzheimers Disease and Related Disorders is related to: PharmaCog is related to: EMIF is parent organization of: PharmaCog |
Dementia, Alzheimer's disease | European Union | ISNI: 0000 0001 0739 010X, Wikidata: Q16827712, nlx_158313, grid.424021.1 | https://ror.org/029yy6d70 | SCR_003802 | 2026-08-29 11:22:00 | 11 | |||||||
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SIU CADRD Dementia Brain Autopsy Program Resource Report Resource Website |
SIU CADRD Dementia Brain Autopsy Program (RRID:SCR_006918) | biomaterial supply resource, brain bank, material resource, tissue bank | A brain autopsy program developed to serve the needs of Illinois families and individuals affected by dementing diseases and to advance dementia research by providing tissue to researchers studying dementing diseases. The SIU School of Medicine (SIU-SM) Dementia Brain Autopsy Program facilitates the postmortem process for families wishing to obtain an autopsy for a loved one. A brain autopsy provides family members with accurate information regarding the exact nature of their relative's dementia. This includes information about the possibility of an inherited disorder which may affect other family members. The brain autopsy also helps clinicians improve their clinical skills by identifying the precise cause of the clinical dementia. | post mortem, autopsy, brain tissue, brain, tissue, dementia, dementing disease, alzheimer's disease |
is listed by: One Mind Biospecimen Bank Listing has parent organization: SIU Center for Alzheimer's Disease and Related Disorders |
Dementia, Dementing disease, Alzheimer's disease | The Dementia Brain Autopsy Program is on hold due to lack of funding, Check back periodically to see if the program has been re-instituted, Available to the research community | nlx_144049 | SCR_006918 | Dementia Brain Autopsy Program, SIU-SM Dementia Brain Autopsy Program, SIU School of Medicine Dementia Brain Autopsy Program, SIU Dementia Brain Autopsy Program | 2026-08-29 11:22:44 | 0 |
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