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Proper Citation: DISABKIDS (RRID:SCR_008614)
Description: DISABKIDS is a European project which aims at enhancing the quality of life and the independence of children with chronic health conditions and their families. The project proceeds according to three phases: 1. Development of an instrument (paper/pencil as well as a computer assisted version) to assess quality of life and patient needs in children/adolescents with chronic health conditions. 2. Psychometric testing of the developed instrument in the 7 pariticipating countries in a pilot study with 378 children/ adolescents and a subsequent field study with 1260 children/adolescents and their families (180 families in each country). 3. Implementation and Evaluation of the instrument in routine care The project expects to achieve progress in quality of life assessment in children and adolescents with disabilities a) by focussing on an European co-operation in construction of an assessment instrument for quality of life, in which the persons concerned (children/adolescents and their families) play a major role, b) by addressing needs for care as explicitly voiced by the persons concerned, c) by including psychosocial as well as clinical and socio-economic determinants of quality of life and d) by developing a mode of administration which is practicable for the patient group concerned, so that in using the instrument, current care can be evaluated and future care can be improved by corresponding to the patients'' needs. Sponsors: The DISABKIDS project funded by the European Commission within the Fifth Framework Programme (FP5)
Synonyms: disabkids
Resource Type: software resource
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