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Resource Name
Office of Rare Diseases Research
RRID:SCR_004121 RRID Copied      
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Office of Rare Diseases Research (RRID:SCR_004121)
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Resource Information

URL: https://rarediseases.org/organizations/nihoffice-of-rare-disease-research/

Proper Citation: Office of Rare Diseases Research (RRID:SCR_004121)

Description: Organization which develops and maintains a centralized database on rare disease clinical research supported by the NIH. It also stimulates rare disease research by supporting scientific workshops and symposia, responds to requests for information on highly technical matters and matters of public policy, provides information to the Office of the Director on matters relating to rare diseases and orphan products, and coordinates and serves as a liaison with Federal and non-Federal national and international organizations.

Abbreviations: ORDR

Synonyms: NIH Office of Rare Diseases Research

Resource Type: meeting resource, topical portal, portal, data or information resource, training resource, funding resource

Keywords: nih organization, rare disease research, rare disease clinical research, rare disease funding, rare disease organization

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This resource

is related to

MalaCards

has parent organization

National Institutes of Health

is parent organization of

Biospecimens/Biorepositories: Rare Disease-HUB (RD-HUB)

is parent organization of

GRDR

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